Search Results for: health information

Working with Consumers

HCC provides a range of support services for health providers who are seeking to increase consumer engagement in health service policy, planning and review.

We are always available to have a chat about your project or plans, however some of our services may attract a fee. Please contact us on info@hconc.org.au if you’d like to discuss this further.

Health Service Consulting

Our consulting services support consumer-focused organisations with the design and development of innovative, contemporary approaches to consumer and community partnerships and involvement. With a people-first approach and a consumer/lived experience lens at the heart of everything we do, our work helps health organisations and staff feel more confident to work with consumers in a meaningful way.

Promoting a Consumer Representative Opportunity

If you are looking for consumers for your committee or project, we may be able to assist you by promoting the opportunity through our networks.

Please download this document and return the requested information to engagement@hconc.org.au

You may also wish to read about some things to consider when involving and partnering with consumers on working groups or committees.

Training for Consumers

We provide free Introduction to Consumer Representation training for health consumers who are interested in becoming a consumer representative.

You can find out more about this training and view upcoming dates here.

We can also run this training on a bespoke basis for your consumer advisory group – find out more here.

Cultural Diversity

We offer a range of free and fee for service workshops to assist health workers gain knowledge and skills to communicate and engage more effectively with people from culturally and linguistically diverse (CaLD), ethnoculturally and linguistically diverse (ELD), and new and emerging communities. Click here to find out more.

For further information

Please contact the Health Consumers Council Engagement team on 9221 3422 or email info@hconc.org.au

Introduction to Consumer Representation

 

 

 

Would you like to use your experience as a patient or carer to create a better health system? We know that pro-active and skilled Consumer Representatives can do just that, and this introductory course will help you get started.

Consumer Representatives play an integral role in the Australian health care system. They provide vital information and ideas from a service user’s perspective, to health services and government committees.

This highly interactive workshop will give you the opportunity to hear, learn and think about important information for consumer representatives including:

  • The roles and purpose of a consumer representative
  • The benefits of consumer representation
  • Barriers to participation for consumer representatives
  • Overcoming barriers to participation
  • Maintaining effectiveness as a consumer representative

Book now and see why people are loving our new, highly interactive learning experiences at HCC

Workshop duration

4 hours

Workshop Location

Health Consumers’ Council, Unit 4, 434 Lord Street, Mount Lawley

Next sessions

Aboriginal and Torres Strait Islander Award

This award is to acknowledge outstanding service to Aboriginal/Torres Strait Islander health consumers. The candidates can be an Aboriginal/Torres Strait Islander person or organisation.

Aboriginal Health Team

This holistic services offers a range of health services and screening in one clinic. There are 9 locations for this innovative service. There are also 4 playgroups across the metropolitan offered after consulting with consumers. The purpose of the playgroup is to get the children ready for school, plus empower the mothers, assist the mums to read to their children, plus mimic the activities utilised each week.

Boodjari Yorgas Family Care Program

The Boodjari Yorgas family care group, including its Aboriginal Grandmothers, are involved on a daily basis with Aboriginal women and their families as ‘consumers’ of maternity care, making sure their needs are met, that they are able to attend appointments, and have a consistent person available to them to answer questions and help them negotiate the, often complex, maternity care system.

Christine Parry | Boodjari Yorgas Family Care Program

Christine Parry has been part of the Moort Boodjari Yorga’s antenatal program since its beginning. Christine’s knowledge is exceptional, and she has contributed to improving non- Aboriginal health professionals cultural understanding of women’s needs and that her Aboriginal and non-Aboriginal colleagues are able to effectively work within the health system to care for Aboriginal women during the important events of pregnancy, birth and early parenting.

Kerri Colgate | St John of God Midland

While patients are in hospital Kerri supports staff to deliver a culturally safe model of care. In addition, Kerri creates relationships between the hospital and community service providers to ensure people get what they need after discharge back into the community. She maintains contact once people have been discharged and supports people to understand their health and how to stay well.

Living Improvements For Everyone (L.I.F.E)

The Chronic Disease Self-Management Living Improvements for Everyone (L.I.F.E) Program objective is to improve the capacity and participation of Aboriginal people in Metropolitan region of Perth in the self- management of chronic disease. This is achieved through the delivery of the LIFE course and culturally secure training and education programs to increase knowledge of chronic disease management for health care professionals and community members.

Leah Bonson | Child and Adolescent Health Service

Leah has worked tirelessly to support the Child and Adolescent Health Service to be more culturally supportive of Aboriginal patients, with a focus on supporting the Child and Adolescent Mental Health Service.

Peter Humphries and Natasha Garlett | Aboriginal Health Liaison Officers, East Metro Health Service

The liaison officers in the LIFE program both Peter and Natasha provide support to improve Aboriginal health by working with the Aboriginal community and other relevant agencies. They do this effectively by treating consumers with dignity and respect.  They share information and knowledge with skill and care. As LIFE Program facilitators they have a wonderful rapport with participants based upon respect and sharing of information in a culturally appropriate way. The partnership between facilitator and consumer is a two-way learning that is professionally embraced.

WA Cervical Cancer Prevention Program

The creation of this resource in partnership with Aboriginal women from across WA has ensured that relevant, timely, culturally appropriate and user friendly information is utilised in the educational strategies targeted to this consumer group. It results in a better understanding of health risks and greater acceptance of cervical cancer prevention strategies for this group of women.

EMER: How consumers & clinicians can improve patient experiences in Hospital Emergency Departments

1 in 10 diagnoses made by a doctor, is thought to be incorrect. It is estimated that each year in Australia 8,000 patients die from medical error. 300,000 hospital admissions are associated with potentially preventable adverse events. The Emergency Medicine Events Register otherwise known as EMER, was developed so that consumers and clinicians could report adverse incidents. To allow clinicians to learn from their mistakes and create an open culture of discussing patient safety.

 

Speaking at ‘Organisational Approaches to Implementing Patient Experience: Lunch Box Session’ from EMER are Anita Deakin and Dr Carmel Crock (Royal Victorian Eye and Ear Hospital & ACEM). ‘EMER is an adverse event and near-miss reporting system that is peer-led, online, anonymous and confidential. It is a means of supporting improvement in safety and quality in emergency medicine by understanding of contributing factors and how the risk of harm to patients can be minimised or prevented.’ (emer.org.au)

 

An important factor to practice improvement in the Emergency Department (ED) requires hearing about the care experiences of patients and their family member or carer. Their experience and perspective (whether it be good or bad) is a key aspect to ensuring patient safety and high quality care in all areas of health care. It is important that health care staff are able to learn from consumer’s experiences to ensure they are providing the best quality of safe health care.

 

The following is an interview with Anita Deakin and Dr Carmel Crock:

Why did EMER consider consumer reporting?

Patients have a very different perspective to medical professionals – they see things that we don’t necessarily see and they are an essential part of the team. The patient voice is extremely important and has often been overlooked in patient safety endeavors.

 

What involvement did consumers have in developing EMER?

From the inception of EMER we have had a consumer advocate on the Steering Group. Every step of the way we have considered how EMER could benefit consumers and how best we could engage them in the process. When we decided to introduce a consumer portal into EMER we involved consumers in developing the content and in testing it.

 

How does EMER improve patient experiences?

We are hoping it will improve patient experience by changing the culture of emergency medicine to openly discuss patient safety concerns within the specialty. We want to hear the patient’s voice.

 

Once the data has been collected, compiled and analysed, are the findings conveyed to the health services to facilitate system change in health care?

Once the data has been collected, compiled and analysed the findings are fed back to the specialty so that trainees and specialists get to hear about the types of incidents that are occurring in Emergency Departments. Some of the ways that we provide feedback is by writing patient safety alerts, journal articles and conference presentations both nationally and internationally.

 

If so what mechanism is used to facilitate system improvements?​

We look for patterns or “common themes” within the incidents reported and feed this information back to the Australasian College for Emergency Medicine (ACEM) that is responsible for training emergency medicine specialists. In this way the college is able to address these themes in their education and training.

 

Why is it important that consumers report these adverse incidents and what benefit they get by reporting them? Why did EMER think it was important to include consumers in the reporting of incidents? I understand that this is revolutionary and that nothing similar is being conducted elsewhere.

 It is important for consumers to report adverse events so that system changes can be made to make Emergency Departments safer for all involved. Often consumers see things that clinicians aren’t aware of, or see it from a different perspective. The consumer and the clinicians are both essential team members in the patient safety quest.

 

The EMER model works in the following way:

Identify – Report – Improve

Identify risks to patient safety

The types of errors that EMER want reported into the system are any incident in the emergency department that either did cause harm or could have caused harm to a patient. This would include things such as diagnostic error, errors around procedures, medication error, errors around clinical handover and safe transfer of patients from the emergency department.

EMER records the serious incidents, but also near misses, good saves, and adverse events. Collecting near misses is very important because for every adverse event there are 10 near misses.

EMER want Emergency doctors and nurses to discuss error openly, they want them to think about patient safety, to think about how things could be done better. To discuss incidents with their supervisors, with medical students, with nurses, to create an open culture of discussing patient safety and error.

Report – Report adverse events and near misses.

The anonymous online system is easy to use and only requires five minutes to enter the incident. Everyone involved with the incident from the consumer to the clinician are able to enter the information required.

When the information is collected it is classified using the Advanced Incident Management System (AIMS), a tool that was used to develop the international classification for patient safety.

Improve – Inform clinical practice and system change

EMER provide immediate feedback to those who report an incident. Once they have read the report it takes them to a thank you page which provide information about the incident which includes a simple graphical representation of the data. It also includes an incident of the month, which provides users an example of what other people are reporting and information that is of interest to the research team.

Once the incidents have been classified using the Advanced Incident Management System (AIMS), specialists from multi-disciplinary groups then review the incidents to determine how they could have been prevented.

To find out more EMER register for the free session ‘Organisational Approaches to Implementing Patient Experience: Lunch Box Session’ on Thursday April 28, 2016. Sponsored by Illuminance Solutions and Empower ICT.

 

Sources:

  • Anita Deakin
  • Dr Carmel Crock, Royal Victorian Eye and Ear Hospital & ACEM

 

Patient Experience Week is Launched!

Patient Experience Week Event Series_Poster

In 2015 the Health Consumers’ Council took the decision to begin a tradition of running events during the global Patient Experience Week which takes place annually in the last week of April. We have also shifted our Consumer Excellence Awards to close Patient Experience Week rather than being held at Christmas.

We are very excited to be able to build on the momentum of the National Safety and Quality Health Service Standards, Partnering with Consumers, the current environment of change, reform and re-focus on the patient by bringing you our inaugural Patient Experience Week Event series on Thursday 28 and Friday 29 April. Highlights include; new author Kate Ryder talking about her book, ‘An Insider’s Guide to Getting the Best out of the Health System’ (Kate will have signed copies of her book available for purchase). Professor Michael Greco, Patient Opinion Australia CEO; Dr Karen Luxford, Clinical Excellence Commission of New South Wales, Director of Patient Based Care; Professor Anne Williams, Murdoch University, Chair of Health Research and Helen Fernando, Consumer Advocate and ‘Patients for Patient Safety’ champion, will present on the latest and best patient experience tools. Click here to book your events now!

Patient Experience Week is an initiative of the Beryl Institute. It is an annual event to celebrate healthcare staff impacting patient experience every day. Inspired by members of the Institute community, Patient Experience Week provides a focused time for organisations to celebrate accomplishments, re-energise efforts and honour the people who impact patient experience every day. From nurses and physicians, to support staff and executive professionals, to patients, families and communities served, the Institute hopes to bring together healthcare organisations across the globe to observe Patient Experience Week.

Patient Experience Week will close with the annual Health Consumers’ Council Health Consumer Excellence Awards. Since 1997 the Health Consumers’ Council has been celebrating the achievements of the unsung heroes in WA Health, from the administrator to the clinician and to recognise health consumers that go out of their way to make a difference. Nominations are now open, and close on April 15th, 2016.

You can always call (08) 9221 3422 or email info@hconc.org.au for more information.  Find us on Facebook or Twitter. Hash tag #hconcwa_PatientExpWk16

Patient Experience Week 2016

Highlights from Patient Experience 2016

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Di Bianchini

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The inaugural Health Consumers’ Council Patient Experience Week Event Series was held on April 28 and 29, 2016 at The Boulevard Centre. A copy of our full program for the two days is available from here. You can click on the links below for more information on each day as well as audios, videos and powerpoints where available.

Day One – Thursday April 28 2016

Our launch was virtually attended by Dr Jason Wolf,  President of the Beryl Institute, an international community of health professionals, consumer and community members dedicated to improving the patient experience. You can click here to view the video of his speech. Also at the launch was the Director General of WA Health, Dr David Russell-Weisz. The launch was directly followed by a theatre playback event which was a powerful interactive demonstration of both patient and care giver experiences. Workshops and presentations on different patient experience initiatives were then showcased.

Day Two – Friday April 29 2016

Day Two began with our best attended event – the Panel Discussion on the Aboriginal Patient Experience. The afternoon featured a massive Panel presenting on Patient Experience Measurement, which was filmed by West Link TV. You can view these presentations on our You Tube channel. For further information click on the title for Day Two.

2016 – HCC Health Consumer Excellence Awards

Our Patient Experience Events concluded with the Annual Health Consumer Excellence Awards held on Friday 29th April. Click on the link above to find out more about the 2016 winners.

Your Say on Cancer WA

A recent state-wide survey shows that many people don’t know that 30 – 40% of cancer cases in WA are preventable. With almost 12, 000 Western Australians diagnosed with cancer every year, this is both shocking and heartbreaking.

 

This information comes from a report recently released by the Department of Health entitled Priorities and Preferences for Cancer Control in Western Australia

 

This report summarises responses to an online public consultation conducted last year on the seven cancers which have the greatest impact on the WA community and greatest opportunity for prevention: bowel, breast, cervical, lung, melanoma, prostate and oesophageal/stomach cancer. The report has revealed that a third of participants were unaware that much could be done to prevent cancer.  In particular, many people were not aware of the dietary risk factors for bowel cancer and that cervical cancer is almost entirely preventable.

 

A poor understanding of the preventability of cancer is not necessarily surprising as historically, much of the discussion about cancer in the community has focused on treatment, sometimes to the detriment of prevention messages.  However, it does highlight the potential for reducing the pain, anguish and cost associated with treating cancer.

 

The value of this new report is that, in seeking out community views on priorities and preferences for cancer control it has identified some clear areas for increased action in the immediate future, including: Increasing the number of Western Australians participating in the National Bowel Cancer Screening Program; Strengthening health promotion messages around recommended red meat intake; reducing processed meat consumption; reducing alcohol consumption; and reducing salt intake, as well as links between obesity and cancer risk; Working to raise the profile of cancer prevention and early detection; and Building on gains made in tackling harm caused by smoking, exposure to ultra violet radiation and asbestos, as well as exploring new and innovative programs to reach vulnerable groups and address emerging issues.

 

This is the first time the Chief Health Officer of WA has asked the community for feedback in a report and the first time (to my knowledge) an online forum has been used to gather community opinion on cancer prevention in WA. As a co-author on the report it was a privilege to bear witness to the frank, open and creative ideas for cancer prevention from our consultation participants.  We are very grateful for their input and the time they devoted to answering our questions.

 

The report was prepared in collaboration with a number of agencies including the Health Consumers’ Council WA, Cancer Council WA, Public Health Advocacy Institute of WA, Curtin University and WA Clinical Oncology Group.

 

To read more about the findings of the consultation and how the Department of Health is responding, you can access the full report here:

 

www.healthywa.wa.gov.au/~/media/Files/HealthyWA/Original/Your-say-on-cancer-wa/13009-chief-health-officer-report.ashx

 

As a project team we also had a lot of fun planning and putting together a consumer website with a range of supporting material including a summary of the report findings, some innovative infographics of cancer data, and expert videos.

 

Check out the website for yourselves here:

www.healthywa.wa.gov.au/yoursayoncancerwa

Guest Blogger: Dr Jennifer Girschik

Consent to Medical Treatment

Every patient has a right to know the details of the health care they are receiving.

Doctors should give a clear, concise explanation in non-medical terms of your condition, problem or disease and the proposed treatment or procedures. This way you, the patient, can make an informed decision about the treatment you are about to undergo.
Information provided should include:

  • the reason for the proposed treatment
  • the risks involved
  • the expected benefits
  • alternative treatment options
  • whether the procedure is irreversible
  • the time involved in the procedure
  • the likely recovery period
  • any costs involved
  • any follow up care that may be required

If this information is not provided to you – ask. Discussion of the treatment and material risks should take place sometime before the proposed treatment or procedure. Should proposed treatment not be acceptable to you, you can refuse it.

  • You can choose to seek a second opinion of any medical matter you feel unsure about.
  • You can have as much time as you need to make your decision. You do not have to say yes immediately after receiving the necessary information.
  • Withdrawal of consent or refusal of further treatment is the prerogative of the patient.
  • If you require access to your medical records in making your decision, please discuss this with your medical practitioner.
  • You also have a right to know the costs involved before the treatment begins; and if you are unable or unwilling to meet the costs of private treatment, you can request a referral to a public hospital facility.
  • You should be informed of the hazards and benefits of any drug prescribed for you. All significant side effects should be disclosed.
  • Where proposed treatment is experimental or is to be part of medical research, the patient has the right to refuse.

Consent: what it means

No medical service can be carried out unless you, the patient, give permission for the service to proceed.

By consenting, you are exercising control over what happens to your body. It is your decision, therefore it is your responsibility to obtain as much information as you consider necessary. If you do not understand any detail of your condition or the procedures being used or the drugs being administered – ASK MORE QUESTIONS. If you are not sure whether you have been told all the possible risks associated with the treatment you are to receive – ASK “Are there any other ill effects that haven’t been mentioned?”

UNDERSTANDING is crucial to the decision you will make.

Consent in the treatment of minors

A minor (less than 18 years) requires consent from a parent or guardian before treatment can commence, with the exception of emergency or where treatment is of a minor nature. A child can consent to their own treatment as long as they are of sufficient maturity to fully comprehend and understand the consequences (this would be assessed). When a parent or guardian consents to treatment on behalf of a minor, they must be given all relevant information to assist them in their decision making.

Consent from the non-English speaker

Consent should only be given by the non-English speaker after an interpreter has been called in and when the patient is satisfied that enough information has been given to make an informed decision. The interpreter should preferably be someone who is familiar with medical terminology and medical procedures and practice.

Consent in emergencies

Where urgent treatment is required to save a patient’s life or prevent harm to his or her health and the patient is not able to consent to the required treatment at the time (for example because the patient is unconscious), the patient is deemed to have consented.

Experimental drugs or procedures

A patient has a legal right to be informed before subjecting themselves to experimental treatment or care. This includes experimental drugs, procedures or therapy. Should students of medicine request to view any procedure, examination or treatment, it is the patient’s right to refuse if they so desire.

What the consent form asks

  • Your written consent to one or more specific procedures or treatments.
  • Consent to “any other procedure considered necessary”. This usually refers to surgical treatment that was unforseen at the outset of an operation or additional treatment, that was deemed necessary.
  • An acknowledgement by you, the patient, that the “nature intended effects and possible unintended effects” of the procedure have been fully explained.
  • Consent to someone other than your usual doctor performing the procedure.
  • A witness signature by you.

 

Privacy Policy

Health Consumer’s Council Privacy Statement

Information Collection and Privacy Protection

The Health Consumers’ Council is keenly aware of the importance of consumer privacy and makes every effort to adhere to guidelines developed by the Australian Privacy Commissioner for Government web sites Guidelines for Federal and ACT Government Websites.
This Privacy Policy outlines what type of information is collected by the Health Consumers’ Council, how such information is used and under what circumstances and to whom it may be disclosed. If you have any privacy concerns, they can be directed to info@hconc.org.au

Your email address

The Health Consumers’ Council will only record your email address in the event that you send us a message by email, or if you subscribe as a member via the website. Your email address will only be used for the purpose for which you have provided it. It will not be added to any mailing lists without your prior written consent. We will not use or disclose your email address for any other purpose.

Security

No personally identifiable information is collected via our website except with your explicit permission.

Anonymity

Should you decide to submit a story about your health, this will be read and moderated by Health Consumers’ Council staff before being posted on the website. We will protect your identity in exactly the same manner in which we protect the identity of any consumer who makes an enquiry about any aspect of health care.

Clickstream and Data Cookies

We use “cookies” to keep track of how our website visitors work their way through our website, and find out what pages are of more interest to them, with the aim of constantly improving our website. A clear explanation of cookies can be found on Australian Privacy Commissioner.

No attempt will be made to identify users or their browsing activities, except in the unlikely event of an investigation, where a law enforcement agency may exercise a warrant to inspect the Internet Service Provider’s log files.
 

Queries, Concerns and Further Information

If you have any queries, concerns or require more information, please do not hesitate to contact us on info@hconc.org.au

Disclaimer

The information provided on this website is for educational purposes only, and is not intended to be a substitute for professional medical advice.

If you have concerns regarding your condition, please consult your healthcare professional without delay. The Health Consumer Council disclaims responsibility for any injury and/or damage to persons or property.

We hope the information contained within our website will answer some of your questions. For more information you can contact the Health Consumers’ Council on (08) 9221 3422 or Freecall 1800 620 780.

Links to or from other websites

The Health Consumers’ Council may provide links to other websites which meet criteria consistent with its website links policy.

These links are provided for convenience and are not an endorsement by the Health Consumers’ Council of the organisation or individual operating the website, or a warranty of any type regarding the website or the information on it. The opinions and recommendations contained in linked websites are not necessarily those of the Health Consumers’ Council.