Search Results for: health information

Consumer, carer, family and community representative network

Health Consumers’ Council organise a number of networking events and workshops for people who are involved in the health system as a consumer, carer, family or community representative. We also host a Facebook group for representatives, as well as sending tailored emails and information.

Networking events

These sessions happen 2 times a year. The aims are to:

  • Provide an opportunity for consumer, carer, family or community reps and members to connect with other reps across the health system in WA
  • Hear updates on key issues in the health sector and from Health Consumers’ Council
  • Build capacity by including a facilitated learning opportunity

Upcoming events

To make sure you receive information about these sessions, sign up to the mailing list here

Stay connected – join our Facebook group and mailing list!

  • You can join the Source – Connect, Learn and Share Facebook page by being signed into Facebook and asking to join the group here
  • You can join the Consumer, carer, family and community rep mailing list here

Any questions?

If you’ve any questions about this network, contact Aimee Riddell at engagement@hconc.org.au

Media releases

Please find below statements released by Health Consumers’ Council.

We welcome contact from journalists on health and health consumer topics and are happy to provide information, interviews and quotes.

For media requests, please contact:
Marketing & Communications | rachel.seeley@hconc.org.au
or
Executive Director | Clare.Mullen@hconc.org.au | 0488 701 839

17/11/12

Health Consumers’ Council WA welcomes increased COVID-19 health protections in hospitals

Health Consumers’ Council welcomes the return of COVID-19 health protections in hospitals as COVID-19 infections rise. We can all play a part in a healthy WA.

31/08/23 HCC welcomes mental health reforms

Health Consumers’ Council welcomes the State Government’s decision to elevate the voice of people with lived experience and consumers in how mental health services are designed, developed and overseen. We commend the Government’s decision to listen to people with lived experience, consumer advocates and others to retain current governance structures with a renewed focus on culture change, accountability and strong lived experience voices.

29/08/2022         Seeking multicultural cancer patients and carers to improve cancer information resources 

For State-wide, regional and rural WA especially, and men: Community consultations on the cancer information needs of culturally and linguistically diverse (CaLD) consumers and carers will be held for men, particularly 1st September, and all regional multicultural people 13th September 2022. There are no cancer resources or publications specifically for culturally and linguistically diverse (CaLD) patients or carers for Western Australian regional communities, men specifically. A consultation discussion project aims to start the process to change that. Health Consumers’ Council (HCC) WA is seeking multicultural, ethnically and linguistically diverse people in the State’s regional and rural areas, and men in particular across metro Perth, to discuss cancer information needs. HCC is specifically looking for CaLD people who have or had cancer – patients – or who are caring for, or cared for, a loved one with cancer to participate in discussions. Contact Nadeen@hconc.org.au  /read more…

 

 26/07/2021         Health Consumers’ Council joins The Great Registration Race for DonateLife Week

Health Consumers’ Council has received a 2021 Community Awareness Grant from the Organ and Tissue Authority to undertake a project aimed at empowering Western Australians to increase their knowledge of the benefits of organ and tissue donation and transplantation, to encourage family discussion and know each other’s donation decisions, and to register online on the Australian Organ Donor Register.

27/11/2020          It’s time to change the way we speak about obesity

Health Consumers’ Council welcomes a new media and communications guide changing the narrative around obesity. Shift. A guide for media and communications professionals is a new communications tool that aims to work with media to influence better public perceptions of overweight and obesity.

29/11/2019          Duty of Care or Buyer Beware? TGA resonse to Shine class action decision

Despite the TGA’s most recent media release claiming progress in the battle for a just resolution to the pelvic mesh crisis, little has changed since the Senate Inquiry into Pelvic Mesh handed down its recommendations in 2018. Peak state Health consumer bodies spell out what still needs to be done.

22/11/2019             Vindicated! But justice deferred – Shine class action against Johnson & Johnson

Peak state Health Consumer bodies have welcomed the judgement vindicating the more than 1200 mesh injured women who participated in the Shine class action against Johnson & Johnson but reserved judgement on the outcome until the size of the final settlement is announced.

1/05/2019             Health Consumer Excellence Award winners announced 

Health Consumers’ Council (HCC) has honoured the everyday heroes in health with the annual Health Consumer Excellence Awards

10/04/2019          Health Consumers’ Council welcomes the Sustainable Health Review Final Report

Health Consumers’ Council (WA) Executive Director Pip Brennan welcomed the report and its recommendations, and said HCC was looking forward to working together with health staff, consumers, non-profit organisations, and the community at large to bring the strategies into action.

11/03/2019           Heritage Identification study published by the Medical Journal of Australia

As the peak advocacy body for patients’ rights in WA, Health Consumers’ Council was consulted during the study which formally documented the frequency of references to a patient’s cultural heritage during medical handover and in hospital medical records.

 

Medical Devices

Have you seen the Netflix Documentary The Bleeding Edge? In not, watch it now… The day before the National Mesh Forum, which was convened on 5th April 2019 by the Health Consumers Councils across Australia and funded by state health departments, the Therapeutic Goods Administration (TGA) released Action Plan for Medical Devices. This was discussed at the Forum and is the culmination of some months work, but health consumers councils were not included in its development. Strategies on the Plan:

Strategy 1 Improve how new devices get on the market Strategy 2 Strengthen monitoring and follow-up of devices already in use Strategy 3 Provide more information to patients about the devices they use

If there’s one thing consumers need to know…

Devices do not need to have as much evidence behind them as medications in order to be listed with the TGA. This is in part reflects the assumption that there is a detailed consent conversation between patients and their surgeons. We would urge all people to think of any procedure requiring any implanted medical device as an experimental treatment, and consent with that level of attention and care. In essence, medical device companies assure TGA of the safety of their devices. It is a highly competitive and lucrative market, every bit as powerful as pharma, or perhaps more so. Post-market testing is supposed to occur, noting when complications occur and ensuring the TGA are aware. This doesn’t happen as much as it needs to, and is not compulsory for surgeons, although it is for medical device companies. Technically the TGA can prosecute medical device companies who don’t advise of complications but in practice this happens rarely. Again, we recommend you watch the Bleeding Edge Documentary to understand more and what’s at stake for patient safety.

Bleeding Edge Documentary

America has the most technologically advanced health care system in the world, yet medical interventions have become the third leading cause of death, and the overwhelming majority of high-risk implanted devices never require a single clinical trial. In The Bleeding Edge, Academy Award nominated filmmakers Kirby Dick and Amy Ziering (The Invisible WarThe Hunting Ground) turn their sights on the $400 billion medical device industry, examining lax regulations, corporate cover-ups, and profit driven incentives that put patients at risk daily. Across the globe there is an investigation underway by the International Consortium of Investigative Journalists about how medical devices are listed on the different jurisdiction’s list of approved devices. Called The Implant Files, the Consortium’s website provides latest news and updates in relation to implants. The Health Consumers’ Council in WA recently noted the implications for how devices are put onto our Therapeutic Goods Administration (TGA) list through the work done on the Pelvic Mesh Inquiry held in 2017-18. In summary, the TGA often relies on slim evidence from other jurisdictions to approve a device, and whether there are any reports of post implant complications to confirm a device’s safety. However, reporting complications is not compulsory, and very often, clinicians don’t. They may not be aware that there is a trend, thinking “it’s only this one person, so is it relevant?” or for whatever reason, they don’t report.  Consumers can report faults in implants they have had put into their body, if they know there is a place to do so on the TGA website, and if they know the serial number of the device. In other words, this is also not likely. There is no easy way of knowing which human being has which implant, as there are only registers for certain kinds of devices, and records are often not digitised or easily shareable for it to be easy to do a product recall. It should be like doing an airbag recall for your car, but it isn’t. The Health Issues Centre in Victoria has begun an anonymous survey for consumers who think they may have been impacted by implants, which you can complete by clicking on this link. Hernia mesh has already emerged as one of the leading implants causing pain and suffering for patients. This issue of harm through implants is only growing in magnitude, and it is clear we need to overhaul of how we approve devices, and have a clear register of any high risk implant being put into a human body. There needs to be a clearer path for consumers to have the side effects of implants taken seriously, and a much more robust way of providing consent in the first place. This issue will be a focus for us in 2019.

Consumer Leaflet Feedback

Click here to read the draft Consumer Information on Mesh Complications

This draft leaflet has been produced by the Australian Commission of Safety and Quality in Health Services. What do you think?

Click here to take the short survey.

This survey has just one question to ask you to rate the leaflet and offering an opportunity to provide a comment.

Click here to take the DISCERN survey

This survey will take at least 15 minutes and uses a validated survey tool to review consumer information, called DISCERN. Organisations are authorised to reproduce The DISCERN Instrument without permission, provided it is used in accordance with the instructions contained in this website to ensure that its methodology is uniform. There are 16 questions over three sections: Reliability, Quality of information on choices, and Overall Rating.

The deadline for all feedback is 8th October. Please contact Pip Brennan pip.brennan@hconc.org.au or 08 9221 3422 if you have any questions.

Pregnancy and maternity care

Pregnancy and maternity care is a key systemic advocacy issue for Health Consumers’ Council. We believe that informed choices are paramount to safe maternal and newborn care, and that involving birthing people and families at all stages and at all levels is critical for improving maternity services.

Women and Babies Hospital

In April 2023, the Western Australian Minister for Health announced that the site of the new Women and Babies Hospital will be relocated to the Fiona Stanley Hospital (FSH) precinct.

Since that time, HCC has hosted a number of opportunities for consumer representatives to discuss and provide input on the plans for the new hospital to the WA Health team.

In summary, feedback provided has included:

  1. advocating for a range of consumer perspectives to be taken on board as plans are developed
  2. questions about how the new location will allow for tri-location of maternity, neonates, and adult services
  3. the lack of consumer involvement in decisions about priorities for services to be located at QEII
  4. the lack of information about the plan for the babies who need surgery immediately after birth, who may not be in a stable condition to travel the distance between the FSH precinct and Perth Children’s Hospital.
  5. concerns about the risks to infant and parent mental health – and the associated long-term impact of early childhood trauma – for families who may be separated when neonatal surgery is needed.
  6. concerns that the decision to relocate to the FSH precinct was made to avoid short-term disruption without considering the long-term impacts of the location for women and babies across WA.

Overall, there was general recognition that there is not an immediately obvious “easy” solution to these issues. HCC have advocated consistently for a range of consumers with diverse perspectives to be included to help to identify the issues and be part of the solution.

Despite this frustration there was strong interest in engaging with the process going forward, to enable consumer voices to be part of the deliberative process to reach the best possible solution for the WA community.

What’s next?

HCC will continue to advocate for consumer voices at all levels of decision making and continue to work with relevant government and health system parties to progress discussion about this issue.

To be kept informed about this work, email info@hconc.org.au

Previous projects

Read more about our previous projects in this area, such as the My Baby WA app, on our archived systemic work page.

Consumer Involvement in Policy and Services

We have a Facebook Group for women and families who would like to be more involved in helping shape maternity services. You can join this group here.

Click here for the Facebook Group

Partners in Change – Obesity Collaborative

Latest news – how you can be involved in shaping health services relating to overweight and obesity

Health Consumers’ Council is working with the WA Department of Health and the WA Primary Health Alliance on implementing the WA Healthy Weight Action Plan 2019 – 2024. (See below for how consumer input informed the plan that was launched in November 2019.)

We know that lots of people in the WA community have experience relating to the health issue of overweight and obesity (approximately 67% of adults and 25% of children). And we want to make sure that work on changing health services in this area is informed by those diverse experiences.

There are several ways you can stay in touch or get involved in this project.

  • We have formed a Consumer and Community Advisory Group, ensuring diverse perspectives and experiences are represented. The advisory group will provide a consumer perspective on a range of activities related to the implementation of the Healthy Weight Action Plan. However, we hope to make more targeted efforts to ensure we get perspectives on people living regionally, children/young people and families, people living in larger bodies, men, and Aboriginal people as we know people with different experiences are impacted in different ways. If you fit into any of the above target groups and want to get involved, please contact Clare Mullen at clare.mullen@hconc.org.au
  • There will be opportunities to share your story or experiences of using health services relating to overweight and obesity – sign up to our mailing list to hear about those opportunities as they arise
  • You can spread the word about this important topic by sharing our posts on social media – follow HCC’s main public Facebook page for updates and join our private moderated Facebook group Partners in Change – Healthy Life for Longer
  • There will be opportunities to be a community champion and take messages out about this work to your communities to broaden the consumer voice – sign up to our mailing list to hear about those opportunities as they arise
  • You can provide feedback by participating in online surveys and attending information sessions – sign up to our mailing list to hear about those opportunities as they arise. We have a survey we would love your input in: Weighing in on Weight Talk is a survey that will help us in developing guidelines for engaging people with overweight and obesity and inform health professionals on how to talk about weight. Also, our next community information session is planned for Wednesday 21 April – details coming soon.
  • You can attend forums and workshops to discuss specific topics relating to the Action Plan – again, sign up to our mailing list to hear about those opportunities as they arise

Upcoming community events

We will be holding consumer focus groups as part of the Curtin University’s Healthy Weight Action Plan Outcomes Framework project which will take place in early May. Click here to find out more and to register.

Previous community events

We held a community conversation around the draft National Preventative Health Strategy to help get consumer feedback on the Strategy so we can produce a submission with a consumer lens. The summary slides to help explain the Strategy can be found here and we encourage you to make your own submission to this consultation. The deadline for submissions is 19 April. The more community voices we can have in this space the better. For those who couldn’t attend the community conversation but would like to share any comments on the draft strategy, you can complete this survey.

The Obesity Collective hosted a 90-minute virtual event on World Obesity Day 2021 with expert speakers from across the country. This session explored many aspects of obesity through a series of ‘rapid talks’ from consumer organisations and health professionals. HCC’s Deputy Director Clare Mullen presented on involving people with lived experience in planning services. The recording of this event can be accessed here.

We held a community information session with Weight Issues Network and The Obesity Collective in February 2021 about how consumers and community members can get involved. We looked at how to speak up for better services for treating overweight and obesity and the importance of sharing our stories to influence change. The recording of the session can be accessed here.

A community information session in December 2020 provided an update on how consumer perspectives were influencing the implementation of the Healthy Weight Action Plan. You can view the slides here and a recording of the session can be accessed here.

At a community morning tea in October 2020, we met consumers and community members for an informal chat, and these three strong themes emerged:

· costs and accessibility of services

· clarity of information

· links around overweight and obesity with mental health and stigma.

Watch a video update on the implementation of the WA Healthy Weight Action Plan

Helen Mitchell from the Department of Health spoke at a recent virtual consumer representative drop-in session on how the HWAP was developed with consumer input, and how the Plan is starting to be implemented.

Get involved in the next steps

You can join a private Facebook Group here or join the email mailing list – we will continue to share information about opportunities for being involved as the plan moves into action.

If you’ve any questions about this project, contact clare.mullen@hconc.org.au or call reception on 9221 3422.

Healthy Weight Action Plan 2019-2024 implementation

The Minister for Health launched the WA Healthy Weight Action Plan 2019-2024 on Tuesday 26 November 2019.

Since 2018, Health Consumers’ Council (HCC) has been working in partnership with the Department of Health and the WA Primary Health Alliance (WAPHA) to ensure the consumer voice is front and centre of policy and service planning in this area.

Since the Minister launched the Action Plan, HCC staff have been working with the team at the Department of Health and WAPHA on the implementation of the plan.

There are a number of projects in the first phase of implementation:

  • WA Obesity Collaborative (Action 1.1) – initial discussions are taking in spring 2020 with people representing health services, policy makers and community. These questions will explore who impacts on overweight and obesity in the WA community and how a collaborative approach could have a positive impact. HCC staff with other community members will be attending to share the diverse feedback we heard from consumers about their experiences.
  • Developing quality indicators and an outcomes framework (Action 5.1) – a team at Curtin University are looking at how to develop a set of quality indicators and an outcomes framework to assess what is a quality health service in the area of overweight and obesity. Again, HCC staff have been involved in the development of this project, sharing insights from consumers received so far.
  • A pilot of an innovative approach trialling the use of total meal replacement products and telehealth support from allied health staff is being led by Diabetes WA – HCC organised a consumer workshop where consumers shared their experiences using these products and what they would find helpful in such a program. HCC staff are also involved in the project steering committee.
  • East Metropolitan Health Service have developed a media guide to support communications staff and journalists to change the narrative on obesity – this will be launched in the coming months. HCC had input into the draft document.
  • East Metropolitan Health Service are developing training for health professionals on how to talk about weight and what support services are available. HCC staff are providing feedback on the draft course.

If you’d like more information about any of these projects, contact Clare Mullen at clare.mullen@hconc.org.au

How consumer feedback shaped the Action Plan

HCC believe it is important that the conversations are informed by real experiences of people managing their weight. We sought feedback via a survey as well as holding face to face workshops and inviting people to tell us their stories of managing their weight online. Read a summary of the consumer engagement activities that informed the first phase of this project. HCC also hosted a Community Conversation in February 2019 to look at the work done to date by the Obesity Collaborative. Helen from the Department of Health gave an overview of how consumer input had informed the discussions at the Summit last year, and gave an update about the development of the draft strategies.

A bold plan for change

 

HCC believes the Action Plan outlines a plan that is not “business as usual” for the health system. We are particularly interested in the inclusion of the actions that recognise a new way of working is needed to really impact on this complex health issue. We look forward to the establishment of the WA Obesity Collaborative and the Community of Change that will provide platforms for people with lived experience, health professionals and policy makers to work together to take positive action.

Stories are powerful

Many people shared their stories of managing their weight with us. Some of these stories were included in the Obesity Collaborative – Partners in Change Summit which took place on 17 October 2018. Here is a copy of the presentation that HCC gave as part of the opening session.

Video 1 – Consumer and Carer Perspectives

Video 2 – Parents and Children’s Perspectives

We will continue to share people’s stories with people in the health system who are working to improve or develop policies or services that will support people to achieve their weight loss goals.

See what people have said in an online brainstorm

We used GroupMap which was set up so that people could anonymously share their feedback about their experiences and comment or like what other people had said.

  • View the online brainstorm here – when you first access the link you’ll be asked for your email address. That’s so that you can be sent the link to return and view it again at a later time.

Patient First

What is Patient First?

The Patient First program helps you to understand important aspects of your health care, before, during and after your hospital stay. It includes information on the following topics:

  • Knowing your rights and responsibilities
  • Knowing that your health care is safe
  • Making the right decisions for you
  • Safe use of medicines
  • Preventing falls, pressure sores and infections
  • Recovering well
  • Being prepared to go home

The Patient First program includes the following resources:

Ask for a booklet from your health professional or visit the HealthyWA website for more information

Only have 2 mins? Watch the Patient Safety Video here!

Senate Inquiry into Pelvic Mesh – A Scandal of International Proportions

On Wednesday 28th March, one day late, the Senate Inquiry into the “Number of women in Australia who have had transvaginal mesh implants and related matters” handed down is final report. The Senate Inquiry was championed by Derryn Hinch, who called pelvic mesh “the biggest medical scandal for Australian women since thalidomide in the 1950s and 1960s, when kids were born without arms and legs”.

Derryn Hinch had listened to the voices of the Australian Pelvic Mesh Support Group women who campaigned tirelessly to be heard. He was able to get the Senate Inquiry convened, and the hope  was that the Senate Inquiry would raise awareness of the permanent, life-altering consequences for some women and call for a ban on its use. However, instead of a ban on the use of mesh, the Inquiry has recommended that mesh only be used “as a last resort”. This Media Release from the Australian Pelvic Mesh Support Group outlines the view of the women across Australia who have suffered permanent, life-altering consequences of pelvic mesh to the Inquiry Report:

There are a few glimmers of hope for mesh-injured women in the report – but the wording used in the recommendations are so weak that it could, if not followed up by robust policy change, give Australian health authorities, specialists and primary carers permission to carry on as usual.

This article summarises the Inquiry Report and highlights the critical importance of always asking the questions you need to provide informed consent. It is simplistic to say that your doctor only has your best interests at heart. There are many other factors at play, as this pelvic mesh scandal has shown.

Complications

Chapter Two of the Inquiry’s Report is a must-read. It documents women’s experiences of complications from mesh implants, compounded by an inability or unwillingness of the medical profession to hear and respond to these reports. At great personal cost, women attended the Senate Inquiry hearings to tell their story:

I presented with mild stress incontinence with exercising and 2 years on I have total and uncontrollable urinary incontinence. I have had multiple hospital admissions, surgeries, invasive investigations and a total loss of my pride as a woman. Name withheld, Submission 458, p. [6].

I dragged myself to work each day and on weekends I was bedridden. I was unable to do normal things like shopping, cooking and housework without debilitating pain and fatigue. My relationship with my family, friends suffered as I could not handle social activities. Not being able to care for my new grandson broke my heart. Surfing was impossible and walking the dogs or doing other light physical exercise was just too painful. Name withheld, Submission 67, p. 1.

To this day, women will still be told “it’s not the mesh” by their GPs and specialists. Even by clinicians working in Mesh Clinics.

Consent

Does it seem peculiar that a Senate Inquiry would spell out the process for ensuring that patients provide informed consent to having a procedure? And yet that is exactly what Recommendation 6 addresses:

The committee recommends that the Australian Commission on Safety and Quality in Health Care prepare guidance material on effective informed consent processes, with a view to ensuring that a dialogue between a medical practitioner and patient should:

  • clarify the rationale for the proposed treatment;
  • discuss the range of alternate treatment options available and their attendant risks and benefits;
  • discuss the likely success and potential complications of the recommended treatment as they relate to the individual patient;
  • provide an opportunity for the patient to ask questions; and
  • confirm that the individual patient has understood the information discussed.

Here is one consent conversation, which was echoed in many of the submissions and evidence given to the Senate Inquiry:

I was told by my implanting surgeon that I would be back at the gym within 10 days post implant procedure and that I would be like a 16-year-old virgin after the implants. Committee Hansard, 18 September 2017, p. 1.

And many other women simply do not know they have been implanted with mesh. Here is another, common reflection from a woman in a submission to the Inquiry:

How can I have not known a foreign medical device had been implanted in my body without my consent? Name withheld, Submission 528, p. [1]

Reporting complications

There are key barriers to the reporting of complications:

1) it is not mandatory for clinicians to report complications:

…based on my experience and that of many other women in this town, I would not trust surgeons to report complications or gather accurate research data. We all have similar stories of complications, including crippling pain and terrible bowel and bladder symptoms, which were trivialised or denied, and we were told we were the only one with an adverse outcome, that it was our fault that our body had reacted to the mesh. We were abandoned by our surgeon and left to cope as best we could. Kathryn, Committee Hansard, 19 September 2017, p. 4.

2) women are simply not believed when they report complications:

The problem is acknowledging the symptoms in the first place, though. There are a lot of GPs who won’t acknowledge it and there are a lot of gynaecologists who won’t acknowledge it… How can they report it if they’re not acknowledging that your pain and complications are from your mesh? Carolyn Chisholm, Committee Hansard, 25 August 2017, p. 9.

3) it is a complex non-consumer friendly process, requiring the serial number of the mesh implant, which most women won’t have without getting their medical records, which may no longer be available:

Although I am interested in reporting the adverse events I have experienced to the TGA, the TGA Users Medical Device Incident Report is daunting and I simply do not have the detailed information they request for device identification… I have encountered obstacles in trying to obtain my medical records. Name withheld, Submission 477, p. 3.

Medical Device Companies – driving uptake

Prior to my involvement in this issue, I had no idea that medical device companies are the bodies that train clinicians in how to use them. Effectively, they can drive demand for their own product:

The sponsoring companies actively promote medical specialists who utilise their products to referring GPs and company-sponsored educational activities, where one of the aims of that activity is to increase utilisation of those products. Sponsoring companies are also actively involved in the education and provision of training to
medical specialists. Associate Professor Christopher Maher, Committee Hansard, 19 September 2017, p. 30.

What about women who have been injured by mesh?

Every aspect of women’s lives are impacted when there are severe complications. Inability to work means significant economic disadvantage. Sexual dysfunction can mean the end of a relationship. Pain robs life of its quality. Accessing medical assistance is hugely problematic when there is a lack of acceptance that the symptoms are related to mesh, and the lack of actual services. Mesh removal services are very patchy, and some women were advised that mesh removal would mean a colostomy for life. Women have voted with their feet and travelled to the US to access specialist mesh removal care which has not resulted in this awful choice between removal and a functioning bowel. The surgery is significant and the outcomes are uncertain. There is no guarantee the debilitating pain will cease once the mesh is removed.

The final Recommendation tries to address the range of impacts on women:

Recommendation 13: The committee recommends that State and Territory governments continue to work with the Australian Commission on Safety and Quality in Health Care to review the provision of services for the use and removal of transvaginal mesh devices. In particular, the committee recommends that consideration be given to the establishment of:

  • information and helplines that women who have received transvaginal mesh implants can contact for advice on the availability of treatment and support services, including financial support programs, in their state;
  • specialist counselling programs, to assist women who have sustained injuries following transvaginal mesh procedures;
  • specialist multidisciplinary units for the assessment and management of complications associated with transvaginal mesh procedures, comprising:
    • comprehensive diagnostic procedures, including relevant diagnostic imaging facilities and expertise;
    • specialist pain management expertise; and
    • high level expertise in the partial or full removal of transvaginal mesh;
  • advice and practical assistance for women who are seeking to access their medical records

The Health Consumers’ Council of WA is aware that many women impacted by mesh implants are seeking full removals, not partial removals. The reality is at present that there are few surgeons, if any, who can perform full removals in Australia. Women have completely lost trust in the clinicians who implanted them in the first place now assuring them that the mesh will be fully removed. Since the Inquiry has finished, we are aware of women who have sought imaging after enduring full removal procedures only to discover there is still mesh inside them.

Western Australia

Women in Western Australia are referred to this page on the Health Consumers Council website for up to date information. This is an area which is rapidly changing. Please contact HCC on 9221 3422 during office hours if further support is required.

Written by Pip Brennan, Executive Director of the Health Consumers’ Council (WA) Inc.

 

Compassionate Care Nominations

Dr Adam Nuttall | AHG Super Clinic Midland

Dr Adam Nuttall is a knowledgeable and compassionate GP. One consumer who shared their experience when nominating said “In 2014, Dr Nuttall saved the life of my daughter, by diagnosing her with a massive Rosette-forming glioneuroma tumour of the fourth ventricle, when no other health professional had the ability nor the knowledge to do so. We believe that Rebecca would not be alive today, if it weren’t for Dr Nuttall’s diagnosis, advice and follow up.” The nominator said that as well as being highly skilled, he is also compassionate and understanding.

Tina Tuira-Waldon | Te Urupu IMPI Inc

Tina is of NZ Maori descent and wishes to acknowledge the custodians of the land, the Wadjuk-Noonga peoples.

Tina said “I have been the support person for those seeking help and those that are grieving due to suicide. Whether it’s supporting them to the hospital or service provider for medical attention or counselling sessions. At least there is someone that they can count on to ensure their health and wellbeing is looked after, even if they can’t understand it themselves. It’s a ‘guiding hand’ at least.

“I have had to use Intervention skills when someone is thinking of suicide. But I keep going, encouraging people that life is worth living even if they feel it isn’t. I say ‘take one moment at a time, and one day at a time, it will get easier for you as time goes by’”.

Dr Judith Thompson | Bodylogic Physiotherapy

Judith is a Specialist Continence and Women’s Health Physiotherapist (as awarded by the Australian College of Physiotherapists in 2008) and is a lecturer on the post graduate Continence and Women’s Health physiotherapy course at Curtin University. Judith specialises in the treatment of bladder and bowel incontinence in men and women, bladder, uterine and bowel prolapse problems, as well as pre and post-natal disorders, and pelvic pain management.

One consumer who shared their experience when nominating said “Judith goes above and beyond her job role to deliver exemplary care. She sacrifices personal time to fit me and others in need into her day. She is truly dedicated to her vocation. She has seen me through a very challenging time in my life and been a pillar of strength and shining light in a time where other health professionals were not accessible”.

Dr Andrew Leech | Queensgate Medical Centre

Dr Andrew Leech is passionate about family health and the integral role of a GP. He believes that GPs have a unique opportunity to see patients regularly, see their concerns from another perspective, and work through the impact those problems can have on each individual member of that family.

One consumer who shared their experience when nominating said Dr Leech was an amazing GP who has “time after time gone above and beyond the call of duty for our kids and family, showing such dedication to his job and patients”.

Dr Nathan Highton | Royal Perth Hospital – Emergency Department

Royal Perth Hospital Emergency Department’s Dr Nathan Highton is recognised for continuing to go above and beyond his call of duty, and making his patients and their family members or carers feel comfortable and well cared for during what can be a stressful and sometimes unsettling time.

One consumer who shared their experience when nominating said Dr Highton was a credit to the hospital. “The care, professionalism and communication skills he has are second to none.”

Kelly Holmes | Cardiac Liaison Nurse at Perth Children’s Hospital

Kelly is the Cardiac Liaison Nurse for Perth Children’s Hospital. She always makes the effort to go above and beyond for patients, and is described as empathetic, caring, understanding and amazing at her job.

Kelly said “One of my most precious gifts in this role is to provide updates throughout the surgery itself, I become the family’s eyes and ears when they cannot be with their child during the most stressful time. I see this role as extremely important and provide honest updates throughout the surgery and do not hide any information from our families. It will be myself that will inform families that all is going well but equally if all is not going well. This is enabled by the trust that is built with the family in the lead up to the surgery and preparations”.

Kalamunda Hospital Palliative Care nursing team

Kalamunda Hospital has seen focused growth in its specialist inpatient palliative care service during its 40 years of operation. In the last few years alone, the palliative care ward has gone from a four bed unit to a 20 bed unit. Clinical Nurse Specialist Cheryl Potter said the service provides comprehensive specialist medical, nursing and allied health care based on the unique needs of patients, carers and families when facing a life limiting illness.

One consumer who shared their experience when nominating said the nursing team always put the patient first. “They go above and beyond and treat every patient with respect and dignity at the worst time of their life. They showed such compassion and care.”

Joanna McIntosh | Team Leader of the Complex Care Coordination service at Armadale Health Service

Jo’s background is in physiotherapy and she has worked in several hospitals across Perth and England including Armadale Health Service, Fremantle Hospital, Rockingham General Hospital, Kettering General Hospital and Innsbrook Hospital. She is an advocate of patient-centred care who continually strives to improve care by strengthening the relationships, partnerships and collaborative care with other community-based services.

“I worked in the Armadale Health Service Emergency Department for 7 years and felt that I made a real difference to patients on their worst day. I could help improve their pain physically, support them emotionally and help them as they were either discharged home or admitted to hospital. Over the years, I realised I could make an even bigger difference to patients and followed my passion of improved communication, interaction and shared care planning with primary health services and GPs. Incorporating my values of kindness, compassion and fairness to everyone, in combination with my determination in the pursuit of excellent patient care, especially to those most vulnerable, has led me to a role I am incredibly passionate about.”

Linda Kuuse | Senior Coordinator of the Stirling Community Care Day Clubs

Linda Kuuse is the Senior Coordinator of the Stirling Community Care Day Clubs in the City of Stirling. She is praised as an outstanding mentor and leader who works together with her staff, clients and carers to deliver optimal health outcomes for the clients she sees on a daily basis, and the wider community.

“She has worked tirelessly to implement a culture change within the environment which has provided some assurance of sustainability of the programs which were previously under threat. During unsettling times, she has been a pivotal support for staff and members, using effective performance management skills to not only retain existing staff members, but to further develop staff skills to provide an enhanced model of care.”

Michelle Baines | Clinical Nurse Specialist at the Kalamunda Palliative Care Unit

Michelle has been praised for consistently showing high standards of quality and compassionate care to patients and their families. She has previously done some amazing work in the Armadale Rehabilitation and Aged Care Ward in facilitating a number of initiatives to prevent patient falls and providing education to staff.

“Michelle has recently undertaken the Clinical Nurse Specialist role up at the Kalamunda Palliative Care Unit where her professional, compassionate and caring efforts have been recognised by both consumers and staff of the community hospital. Michelle has taken her new role in her stride and identified a number of initiatives to improve the overall patient and family experience across the Palliative Care Unit. This includes communication workshops for all staff to attend covering subjects like understanding triggers and escalation, and strategies to improve communication by really putting yourself in others shoes.”

Naomi Pettersson | King Edward Memorial Hospital for Women – Physiotherapy Department

Naomi is a physiotherapist with specialised skills and knowledge in women’s health and neonatal physiotherapy, providing expert care to help improve
quality of life for women.

One consumer who shared their experience when nominating said “Naomi is the most empathetic, kind and compassionate person I have been lucky enough to receive treatment from. From the moment I walked into her room she immediately made me feel at ease, and she has continued to make me feel comfortable at every appointment. She has made me feel like no question is too dumb, she truly listens to my suggestions, and constantly encourages me to listen to my body, reiterating that I know my own body best. I can’t thank Naomi enough for always looking at me as a whole person, for making me feel seen and heard, and for always treating me with incredible kindness and compassion”.

SJOG Endoscopy Unit

The Endoscopy Unit at St John of God Murdoch Hospital performs, on average, 240 procedures per week.

One consumer shared their experience when nominating said the team helped alleviate her stress and address her concerns before a procedure. “I received such thoughtful and compassionate care – I had full confidence in this friendly and professional team.”

RPH Haematology & Oncology

One consumer who shared their experience when nominating said “I am a cancer patient and attend appointments regularly at this department. I am an Aboriginal Elder of this area, being 60 years of age. Over the time I have attended the reception area of haematology and oncology, I have been observing the staff at reception. They are very, very committed to their work”.

Teresa Togno | Mental Health Recovery Worker at Chorus

Chorus is an organisation that offers support, mentoring, and a future for people with mental health illnesses. Teresa has been praised for going out of her way to make sure clients feel listened to, feel supported and feel safe.

“She makes sure contact details of organisations are given to clients in case they need support after hours, she attends as an advocate where needed. She turns up early for work if a client has been unwell and may need extra support or some inspirational words to get through till psychs/specialists open at 9am. Many clients see her as their first call of direction/support and she always has good things to say, very pleasant happy personality.”

Kieran English | Stroke Rehabilitation – Royal Perth Bentley Group

The Bentley Stroke Rehabilitation Unit (Ward 5) provides exceptional care for patients requiring rehabilitation following stroke or neurological injury for younger adult patients requiring rehabilitation. The nursing team work collaboratively with all multidisciplinary members, and include in their team both the patient support staff and ward clerks to provide holistic, seamless care from the point of admission to the point of discharge, facilitating often complex barriers to enable patients to return to their home in the community in some instances which would appear unachievable during the planning process.

Carli Beange | Clinical Midwife – Armadale Kalamunda Group

Carli has been recognised by patients and their families on numerous occasions for her dedicated and professional ongoing care and commitment to her clients. She has been described as caring and supportive, specifically when things didn’t go as planned and patients became distressed and anxious.

Carli’s patients often describe her as amazing and awesome, saying she goes above and beyond in her role. They say they have great respect, appreciation and admiration for her and the significant role she has played in their lives. She has been able to help women feel comfortable and confident becoming first time mothers, being the perfect balance of assertive and helping to realise realistic expectations.

Carissa Wright |  Mental Health Advocate at Our Voice 4 Change

Carissa Wright is an active mental health advocate and lived experience speaker. In addition to her speaker role with Consumers of Mental Health WA, Carissa has been involved with a range of mental health organisations, including speaking for Suicide Prevention Australia. She is also a contributing author for one of the leading mental health sites in the world.

Her expertise is sharing her experience with Borderline Personality Disorder. She is currently involved in co-designing a BPD program in Perth.

Fiona Stanley Hospital Neonatal Unit (SMHS)

The team in the Neonatal Unit at Fiona Stanley Hospital has been praised recently by consumers for their high level of care and for going above and beyond for their patients. They have been described as being supportive, kind, respectful and cooperative. One consumers said their care “had a profound effective on two new grieving parents” and another said they “gave such warmth and love to our premature twins, giving us, as parents, the strength to cope with the stress”. Consumers thanked them for their friendly smiles and kind words.

What We Do

The Health Consumers’ Council’s purpose is to:

1. increase the capacity of all people to influence the future direction of  health care

  • Our Engagement Program provides training and other support to ensure people can have a say in health policy, planning and review.
  • Our Culture and Diversity Coordinator ensures that people from a non-English speaking background are considered in health service planning.
  • We also have an Aboriginal Engagement Coordinator who focuses on ensuring Aboriginal communities are able to have their say and participate in health service reform.
  • We run regular events and workshops, including Patient Experience Week events, and Health Consumer Excellence Awards.
  • We also provide systemic advocacy for the WA Community by participating on a large range of committees and working groups to ensure the consumer voice is heard at the highest level. Have a look at our Issues  and our Policy and Reform pages to see what we are currently working on.

2. and to make informed choices.

  • We provide an Individual Advocacy Service during office hours Monday to Friday to help you navigate our health system.
  • In some instances we may be able to provide you with enough information to link with the right service, or we can assist you with our flexible, transaction-focused practical independent advocacy service. At times there can be a wait for assistance up to four weeks.
  • We also provide Self-Advocacy Information and Resources to assist you in resolving your issue.

We are keenly aware of the difficulties facing people outside Perth and have a toll-free number for country callers: 1800-620-780.