Search Results for: health information

Patient First

What is Patient First?

The Patient First program helps you to understand important aspects of your health care, before, during and after your hospital stay. It includes information on the following topics:

  • Knowing your rights and responsibilities
  • Knowing that your health care is safe
  • Making the right decisions for you
  • Safe use of medicines
  • Preventing falls, pressure sores and infections
  • Recovering well
  • Being prepared to go home

The Patient First program includes the following resources:

Ask for a booklet from your health professional or visit the HealthyWA website for more information

Only have 2 mins? Watch the Patient Safety Video here!

Senate Inquiry into Pelvic Mesh – A Scandal of International Proportions

On Wednesday 28th March, one day late, the Senate Inquiry into the “Number of women in Australia who have had transvaginal mesh implants and related matters” handed down is final report. The Senate Inquiry was championed by Derryn Hinch, who called pelvic mesh “the biggest medical scandal for Australian women since thalidomide in the 1950s and 1960s, when kids were born without arms and legs”.

Derryn Hinch had listened to the voices of the Australian Pelvic Mesh Support Group women who campaigned tirelessly to be heard. He was able to get the Senate Inquiry convened, and the hope  was that the Senate Inquiry would raise awareness of the permanent, life-altering consequences for some women and call for a ban on its use. However, instead of a ban on the use of mesh, the Inquiry has recommended that mesh only be used “as a last resort”. This Media Release from the Australian Pelvic Mesh Support Group outlines the view of the women across Australia who have suffered permanent, life-altering consequences of pelvic mesh to the Inquiry Report:

There are a few glimmers of hope for mesh-injured women in the report – but the wording used in the recommendations are so weak that it could, if not followed up by robust policy change, give Australian health authorities, specialists and primary carers permission to carry on as usual.

This article summarises the Inquiry Report and highlights the critical importance of always asking the questions you need to provide informed consent. It is simplistic to say that your doctor only has your best interests at heart. There are many other factors at play, as this pelvic mesh scandal has shown.

Complications

Chapter Two of the Inquiry’s Report is a must-read. It documents women’s experiences of complications from mesh implants, compounded by an inability or unwillingness of the medical profession to hear and respond to these reports. At great personal cost, women attended the Senate Inquiry hearings to tell their story:

I presented with mild stress incontinence with exercising and 2 years on I have total and uncontrollable urinary incontinence. I have had multiple hospital admissions, surgeries, invasive investigations and a total loss of my pride as a woman. Name withheld, Submission 458, p. [6].

I dragged myself to work each day and on weekends I was bedridden. I was unable to do normal things like shopping, cooking and housework without debilitating pain and fatigue. My relationship with my family, friends suffered as I could not handle social activities. Not being able to care for my new grandson broke my heart. Surfing was impossible and walking the dogs or doing other light physical exercise was just too painful. Name withheld, Submission 67, p. 1.

To this day, women will still be told “it’s not the mesh” by their GPs and specialists. Even by clinicians working in Mesh Clinics.

Consent

Does it seem peculiar that a Senate Inquiry would spell out the process for ensuring that patients provide informed consent to having a procedure? And yet that is exactly what Recommendation 6 addresses:

The committee recommends that the Australian Commission on Safety and Quality in Health Care prepare guidance material on effective informed consent processes, with a view to ensuring that a dialogue between a medical practitioner and patient should:

  • clarify the rationale for the proposed treatment;
  • discuss the range of alternate treatment options available and their attendant risks and benefits;
  • discuss the likely success and potential complications of the recommended treatment as they relate to the individual patient;
  • provide an opportunity for the patient to ask questions; and
  • confirm that the individual patient has understood the information discussed.

Here is one consent conversation, which was echoed in many of the submissions and evidence given to the Senate Inquiry:

I was told by my implanting surgeon that I would be back at the gym within 10 days post implant procedure and that I would be like a 16-year-old virgin after the implants. Committee Hansard, 18 September 2017, p. 1.

And many other women simply do not know they have been implanted with mesh. Here is another, common reflection from a woman in a submission to the Inquiry:

How can I have not known a foreign medical device had been implanted in my body without my consent? Name withheld, Submission 528, p. [1]

Reporting complications

There are key barriers to the reporting of complications:

1) it is not mandatory for clinicians to report complications:

…based on my experience and that of many other women in this town, I would not trust surgeons to report complications or gather accurate research data. We all have similar stories of complications, including crippling pain and terrible bowel and bladder symptoms, which were trivialised or denied, and we were told we were the only one with an adverse outcome, that it was our fault that our body had reacted to the mesh. We were abandoned by our surgeon and left to cope as best we could. Kathryn, Committee Hansard, 19 September 2017, p. 4.

2) women are simply not believed when they report complications:

The problem is acknowledging the symptoms in the first place, though. There are a lot of GPs who won’t acknowledge it and there are a lot of gynaecologists who won’t acknowledge it… How can they report it if they’re not acknowledging that your pain and complications are from your mesh? Carolyn Chisholm, Committee Hansard, 25 August 2017, p. 9.

3) it is a complex non-consumer friendly process, requiring the serial number of the mesh implant, which most women won’t have without getting their medical records, which may no longer be available:

Although I am interested in reporting the adverse events I have experienced to the TGA, the TGA Users Medical Device Incident Report is daunting and I simply do not have the detailed information they request for device identification… I have encountered obstacles in trying to obtain my medical records. Name withheld, Submission 477, p. 3.

Medical Device Companies – driving uptake

Prior to my involvement in this issue, I had no idea that medical device companies are the bodies that train clinicians in how to use them. Effectively, they can drive demand for their own product:

The sponsoring companies actively promote medical specialists who utilise their products to referring GPs and company-sponsored educational activities, where one of the aims of that activity is to increase utilisation of those products. Sponsoring companies are also actively involved in the education and provision of training to
medical specialists. Associate Professor Christopher Maher, Committee Hansard, 19 September 2017, p. 30.

What about women who have been injured by mesh?

Every aspect of women’s lives are impacted when there are severe complications. Inability to work means significant economic disadvantage. Sexual dysfunction can mean the end of a relationship. Pain robs life of its quality. Accessing medical assistance is hugely problematic when there is a lack of acceptance that the symptoms are related to mesh, and the lack of actual services. Mesh removal services are very patchy, and some women were advised that mesh removal would mean a colostomy for life. Women have voted with their feet and travelled to the US to access specialist mesh removal care which has not resulted in this awful choice between removal and a functioning bowel. The surgery is significant and the outcomes are uncertain. There is no guarantee the debilitating pain will cease once the mesh is removed.

The final Recommendation tries to address the range of impacts on women:

Recommendation 13: The committee recommends that State and Territory governments continue to work with the Australian Commission on Safety and Quality in Health Care to review the provision of services for the use and removal of transvaginal mesh devices. In particular, the committee recommends that consideration be given to the establishment of:

  • information and helplines that women who have received transvaginal mesh implants can contact for advice on the availability of treatment and support services, including financial support programs, in their state;
  • specialist counselling programs, to assist women who have sustained injuries following transvaginal mesh procedures;
  • specialist multidisciplinary units for the assessment and management of complications associated with transvaginal mesh procedures, comprising:
    • comprehensive diagnostic procedures, including relevant diagnostic imaging facilities and expertise;
    • specialist pain management expertise; and
    • high level expertise in the partial or full removal of transvaginal mesh;
  • advice and practical assistance for women who are seeking to access their medical records

The Health Consumers’ Council of WA is aware that many women impacted by mesh implants are seeking full removals, not partial removals. The reality is at present that there are few surgeons, if any, who can perform full removals in Australia. Women have completely lost trust in the clinicians who implanted them in the first place now assuring them that the mesh will be fully removed. Since the Inquiry has finished, we are aware of women who have sought imaging after enduring full removal procedures only to discover there is still mesh inside them.

Western Australia

Women in Western Australia are referred to this page on the Health Consumers Council website for up to date information. This is an area which is rapidly changing. Please contact HCC on 9221 3422 during office hours if further support is required.

Written by Pip Brennan, Executive Director of the Health Consumers’ Council (WA) Inc.

 

Compassionate Care Nominations

Dr Adam Nuttall | AHG Super Clinic Midland

Dr Adam Nuttall is a knowledgeable and compassionate GP. One consumer who shared their experience when nominating said “In 2014, Dr Nuttall saved the life of my daughter, by diagnosing her with a massive Rosette-forming glioneuroma tumour of the fourth ventricle, when no other health professional had the ability nor the knowledge to do so. We believe that Rebecca would not be alive today, if it weren’t for Dr Nuttall’s diagnosis, advice and follow up.” The nominator said that as well as being highly skilled, he is also compassionate and understanding.

Tina Tuira-Waldon | Te Urupu IMPI Inc

Tina is of NZ Maori descent and wishes to acknowledge the custodians of the land, the Wadjuk-Noonga peoples.

Tina said “I have been the support person for those seeking help and those that are grieving due to suicide. Whether it’s supporting them to the hospital or service provider for medical attention or counselling sessions. At least there is someone that they can count on to ensure their health and wellbeing is looked after, even if they can’t understand it themselves. It’s a ‘guiding hand’ at least.

“I have had to use Intervention skills when someone is thinking of suicide. But I keep going, encouraging people that life is worth living even if they feel it isn’t. I say ‘take one moment at a time, and one day at a time, it will get easier for you as time goes by’”.

Dr Judith Thompson | Bodylogic Physiotherapy

Judith is a Specialist Continence and Women’s Health Physiotherapist (as awarded by the Australian College of Physiotherapists in 2008) and is a lecturer on the post graduate Continence and Women’s Health physiotherapy course at Curtin University. Judith specialises in the treatment of bladder and bowel incontinence in men and women, bladder, uterine and bowel prolapse problems, as well as pre and post-natal disorders, and pelvic pain management.

One consumer who shared their experience when nominating said “Judith goes above and beyond her job role to deliver exemplary care. She sacrifices personal time to fit me and others in need into her day. She is truly dedicated to her vocation. She has seen me through a very challenging time in my life and been a pillar of strength and shining light in a time where other health professionals were not accessible”.

Dr Andrew Leech | Queensgate Medical Centre

Dr Andrew Leech is passionate about family health and the integral role of a GP. He believes that GPs have a unique opportunity to see patients regularly, see their concerns from another perspective, and work through the impact those problems can have on each individual member of that family.

One consumer who shared their experience when nominating said Dr Leech was an amazing GP who has “time after time gone above and beyond the call of duty for our kids and family, showing such dedication to his job and patients”.

Dr Nathan Highton | Royal Perth Hospital – Emergency Department

Royal Perth Hospital Emergency Department’s Dr Nathan Highton is recognised for continuing to go above and beyond his call of duty, and making his patients and their family members or carers feel comfortable and well cared for during what can be a stressful and sometimes unsettling time.

One consumer who shared their experience when nominating said Dr Highton was a credit to the hospital. “The care, professionalism and communication skills he has are second to none.”

Kelly Holmes | Cardiac Liaison Nurse at Perth Children’s Hospital

Kelly is the Cardiac Liaison Nurse for Perth Children’s Hospital. She always makes the effort to go above and beyond for patients, and is described as empathetic, caring, understanding and amazing at her job.

Kelly said “One of my most precious gifts in this role is to provide updates throughout the surgery itself, I become the family’s eyes and ears when they cannot be with their child during the most stressful time. I see this role as extremely important and provide honest updates throughout the surgery and do not hide any information from our families. It will be myself that will inform families that all is going well but equally if all is not going well. This is enabled by the trust that is built with the family in the lead up to the surgery and preparations”.

Kalamunda Hospital Palliative Care nursing team

Kalamunda Hospital has seen focused growth in its specialist inpatient palliative care service during its 40 years of operation. In the last few years alone, the palliative care ward has gone from a four bed unit to a 20 bed unit. Clinical Nurse Specialist Cheryl Potter said the service provides comprehensive specialist medical, nursing and allied health care based on the unique needs of patients, carers and families when facing a life limiting illness.

One consumer who shared their experience when nominating said the nursing team always put the patient first. “They go above and beyond and treat every patient with respect and dignity at the worst time of their life. They showed such compassion and care.”

Joanna McIntosh | Team Leader of the Complex Care Coordination service at Armadale Health Service

Jo’s background is in physiotherapy and she has worked in several hospitals across Perth and England including Armadale Health Service, Fremantle Hospital, Rockingham General Hospital, Kettering General Hospital and Innsbrook Hospital. She is an advocate of patient-centred care who continually strives to improve care by strengthening the relationships, partnerships and collaborative care with other community-based services.

“I worked in the Armadale Health Service Emergency Department for 7 years and felt that I made a real difference to patients on their worst day. I could help improve their pain physically, support them emotionally and help them as they were either discharged home or admitted to hospital. Over the years, I realised I could make an even bigger difference to patients and followed my passion of improved communication, interaction and shared care planning with primary health services and GPs. Incorporating my values of kindness, compassion and fairness to everyone, in combination with my determination in the pursuit of excellent patient care, especially to those most vulnerable, has led me to a role I am incredibly passionate about.”

Linda Kuuse | Senior Coordinator of the Stirling Community Care Day Clubs

Linda Kuuse is the Senior Coordinator of the Stirling Community Care Day Clubs in the City of Stirling. She is praised as an outstanding mentor and leader who works together with her staff, clients and carers to deliver optimal health outcomes for the clients she sees on a daily basis, and the wider community.

“She has worked tirelessly to implement a culture change within the environment which has provided some assurance of sustainability of the programs which were previously under threat. During unsettling times, she has been a pivotal support for staff and members, using effective performance management skills to not only retain existing staff members, but to further develop staff skills to provide an enhanced model of care.”

Michelle Baines | Clinical Nurse Specialist at the Kalamunda Palliative Care Unit

Michelle has been praised for consistently showing high standards of quality and compassionate care to patients and their families. She has previously done some amazing work in the Armadale Rehabilitation and Aged Care Ward in facilitating a number of initiatives to prevent patient falls and providing education to staff.

“Michelle has recently undertaken the Clinical Nurse Specialist role up at the Kalamunda Palliative Care Unit where her professional, compassionate and caring efforts have been recognised by both consumers and staff of the community hospital. Michelle has taken her new role in her stride and identified a number of initiatives to improve the overall patient and family experience across the Palliative Care Unit. This includes communication workshops for all staff to attend covering subjects like understanding triggers and escalation, and strategies to improve communication by really putting yourself in others shoes.”

Naomi Pettersson | King Edward Memorial Hospital for Women – Physiotherapy Department

Naomi is a physiotherapist with specialised skills and knowledge in women’s health and neonatal physiotherapy, providing expert care to help improve
quality of life for women.

One consumer who shared their experience when nominating said “Naomi is the most empathetic, kind and compassionate person I have been lucky enough to receive treatment from. From the moment I walked into her room she immediately made me feel at ease, and she has continued to make me feel comfortable at every appointment. She has made me feel like no question is too dumb, she truly listens to my suggestions, and constantly encourages me to listen to my body, reiterating that I know my own body best. I can’t thank Naomi enough for always looking at me as a whole person, for making me feel seen and heard, and for always treating me with incredible kindness and compassion”.

SJOG Endoscopy Unit

The Endoscopy Unit at St John of God Murdoch Hospital performs, on average, 240 procedures per week.

One consumer shared their experience when nominating said the team helped alleviate her stress and address her concerns before a procedure. “I received such thoughtful and compassionate care – I had full confidence in this friendly and professional team.”

RPH Haematology & Oncology

One consumer who shared their experience when nominating said “I am a cancer patient and attend appointments regularly at this department. I am an Aboriginal Elder of this area, being 60 years of age. Over the time I have attended the reception area of haematology and oncology, I have been observing the staff at reception. They are very, very committed to their work”.

Teresa Togno | Mental Health Recovery Worker at Chorus

Chorus is an organisation that offers support, mentoring, and a future for people with mental health illnesses. Teresa has been praised for going out of her way to make sure clients feel listened to, feel supported and feel safe.

“She makes sure contact details of organisations are given to clients in case they need support after hours, she attends as an advocate where needed. She turns up early for work if a client has been unwell and may need extra support or some inspirational words to get through till psychs/specialists open at 9am. Many clients see her as their first call of direction/support and she always has good things to say, very pleasant happy personality.”

Kieran English | Stroke Rehabilitation – Royal Perth Bentley Group

The Bentley Stroke Rehabilitation Unit (Ward 5) provides exceptional care for patients requiring rehabilitation following stroke or neurological injury for younger adult patients requiring rehabilitation. The nursing team work collaboratively with all multidisciplinary members, and include in their team both the patient support staff and ward clerks to provide holistic, seamless care from the point of admission to the point of discharge, facilitating often complex barriers to enable patients to return to their home in the community in some instances which would appear unachievable during the planning process.

Carli Beange | Clinical Midwife – Armadale Kalamunda Group

Carli has been recognised by patients and their families on numerous occasions for her dedicated and professional ongoing care and commitment to her clients. She has been described as caring and supportive, specifically when things didn’t go as planned and patients became distressed and anxious.

Carli’s patients often describe her as amazing and awesome, saying she goes above and beyond in her role. They say they have great respect, appreciation and admiration for her and the significant role she has played in their lives. She has been able to help women feel comfortable and confident becoming first time mothers, being the perfect balance of assertive and helping to realise realistic expectations.

Carissa Wright |  Mental Health Advocate at Our Voice 4 Change

Carissa Wright is an active mental health advocate and lived experience speaker. In addition to her speaker role with Consumers of Mental Health WA, Carissa has been involved with a range of mental health organisations, including speaking for Suicide Prevention Australia. She is also a contributing author for one of the leading mental health sites in the world.

Her expertise is sharing her experience with Borderline Personality Disorder. She is currently involved in co-designing a BPD program in Perth.

Fiona Stanley Hospital Neonatal Unit (SMHS)

The team in the Neonatal Unit at Fiona Stanley Hospital has been praised recently by consumers for their high level of care and for going above and beyond for their patients. They have been described as being supportive, kind, respectful and cooperative. One consumers said their care “had a profound effective on two new grieving parents” and another said they “gave such warmth and love to our premature twins, giving us, as parents, the strength to cope with the stress”. Consumers thanked them for their friendly smiles and kind words.

What We Do

The Health Consumers’ Council’s purpose is to:

1. increase the capacity of all people to influence the future direction of  health care

  • Our Engagement Program provides training and other support to ensure people can have a say in health policy, planning and review.
  • Our Culture and Diversity Coordinator ensures that people from a non-English speaking background are considered in health service planning.
  • We also have an Aboriginal Engagement Coordinator who focuses on ensuring Aboriginal communities are able to have their say and participate in health service reform.
  • We run regular events and workshops, including Patient Experience Week events, and Health Consumer Excellence Awards.
  • We also provide systemic advocacy for the WA Community by participating on a large range of committees and working groups to ensure the consumer voice is heard at the highest level. Have a look at our Issues  and our Policy and Reform pages to see what we are currently working on.

2. and to make informed choices.

  • We provide an Individual Advocacy Service during office hours Monday to Friday to help you navigate our health system.
  • In some instances we may be able to provide you with enough information to link with the right service, or we can assist you with our flexible, transaction-focused practical independent advocacy service. At times there can be a wait for assistance up to four weeks.
  • We also provide Self-Advocacy Information and Resources to assist you in resolving your issue.

We are keenly aware of the difficulties facing people outside Perth and have a toll-free number for country callers: 1800-620-780.

Systemic Advocacy

 

The definition of systemic advocacy is:

Organisations, groups, or individuals working for long-term social and legislative change to make sure legislation, policies and practices equitably support the rights, needs and interests of all people. Advocacy is done through acting, speaking, listening, and writing to promote, protect and defend the rights of a person or community.

The systemic advocacy work we do aims to:

  • Introduce, support, and influence positive long-term changes to the WA Health System; changes that support and respond to the voices and needs of the community, including legislative, policy and practice environments throughout public and private sectors
  • Ensure that the rights and interests of all people living in Western Australia are listened to and upheld, especially diverse and marginalised people and communities, including First Nations people, people in rural and remote areas, Culturally and Linguistically Diverse (CaLD) people, children and youth, people serving time in the justice system and members of the LGBTQIA+ community
  • Promote and partner in improving opportunities and outcomes involving living-expertise and collaboration
  • Ensure the issues and experiences of individuals and communities inform the focus of our work
  • Share information and opportunities for community involvement
  • Represent the Consumer Voice to WA Health

Our systemic advocacy work aims to support and further HCC’s vision of equitable, person-centered, quality healthcare for all those living in Western Australia, and aims to model the values of respect, kindness, equity, working together, integrity and empowerment.

If you have any questions about Systemic Advocacy in the Health System, or about any of our listed involvements, please email info@hconc.org.au 

 

Advocating through Committees

 

Archived Systemic Advocacy work

Staying Safe at Home – Patient’s Own Medicines

This is a guest blog from researcher Brock Delfonte.

Managing your medicines at home can be complicated. It is important for your health that you always take the right medicines at the right time and know why you take each one. It is also just as complicated managing your medicines when you are admitted to hospital. Keeping track of all your medicines is vital but can be difficult as there are a number of different names, types and forms that medicines can come in, including:

· tablets, capsules and liquids
· patches, creams and ointments
· drops and sprays for eyes, nose, ears and mouth
· inhalers and puffers
· injections and implants
· pessaries and suppositories.

Most medicines are usually prescribed or provided by a doctor, nurse or pharmacist. Herbal, complementary or “over-the-counter” products like vitamins, nutritional supplements, and natural remedies are also considered medicines, as is anything you may obtain at supermarkets, health food stores or over the Internet.

Bringing in your medicines to hospital is one way you can help hospital staff get your medicines right. Bringing all of your medicines, including anything you keep in places like the fridge or by the bedside, lets hospital staff know what you’re taking and makes sure that you will be able to continue taking them if needed. There are a number of other benefits from bringing in your own medicines to hospital:

· Hospital staff can use some of the information found on the medicine labels to help them, including the details of any doctors or nurses who prescribed medicines for you and the pharmacies they came from
· Having the medicines with you can help you remember exactly how you take them, and help you remember any other medicines you may take
· Having your medicines with you can allow hospital staff to better help you should any of your usual medicines change in any way or are stopped during your hospital stay.

Remember to store your medicines correctly at home, and have them easy to access should you or your family or carers need to collect them to bring in to hospital. Bringing in all your medicines to hospital each time and wherever possible helps hospital staff provide you with the best quality care they can.

Brock Delfante MSHP
BCom BSc MPharm PhD (c)

Complementary Therapies in Cancer Care

“Studies show 77% of cancer patients who incorporate complementary approaches believe it improves their quality of life. 73% state it makes them feel hopeful. 71% say it helps to boost their immune system” (Mao et. al. 2011). In Western Australia Solaris Cancer Care leads the way in providing complementary therapies in cancer care.

Solaris Cancer Care

In July the Cancer Council WA held the ‘Integrative Oncology Symposium: Pathways to Wellness and Survivorship’. The symposium explored new ways to improve symptom control, alleviate patient distress and reduce suffering. The speakers were health professionals and academics who provided their insights into alternative therapies, lessons learnt in the treatment of cancer and patient experience, this included Clinical Professor David Joske founder of Solaris Cancer Care (2001).

“Although excellent resources have long been available to treat cancer medically, it became clear to me that the emotional and supportive care needs of cancer patients and their families were often overlooked.

So Solaris Cancer Care was born – a drop in centre in Sir Charles where cancer patients could receive free support and advice and supervised complementary integrated therapies that would support their mainstream treatment.

It was a radical idea at the time, and still is in some respect. But the idea has continued to grow and over the last 15 years we have opened three additional clinics in Albany, Bunbury and St John of God,” he says (Solaris Cancer Care 2016).

Since its inception Solaris has provided cancer patients with support services and access to complementary integrative therapies. It all started with a comment from a patient, Roy in 1998. Roy said that when he mentioned to one of his treating physicians that he was seeking complementary therapy, they had shut him down. Clinical Prof. Joske said he realised he “needed to get on board with complementary therapy.” By not accepting complementary therapy it had created a barrier between him and his patients so “we weren’t quite rowing in the same direction.”

Solaris Cancer Care Now

Now 100 people per week drop into Solaris, with no medical misadventure. Patients who access the services have a reduction in symptom distress and improved quality of life. Clinical Prof. Joske said during his time treating cancer patients the most valuable lessons he has learnt are from his patients:

  • The power of words and permission to die – What we say to people (and when) matters!
  • A role for complementary medicine – Accept how people cope with cancer.
  • The promise of new biology – cancer is a chronic illness
  • Survivorship

Clinical Prof. Joske closed his presentation with, as Hippocrates said, “Cure sometimes, treat often, comfort always”. For more information about the complementary therapies offered at Solaris Cancer Care go to: solaris care

Lucy Palermo | Marketing & Communications Coordinator | Health Consumers’ Council (WA)

References:

Mao, J, Palmer, C, Healy, K, Desai, K & Amsterdam, J 2011, ‘Complementary and alternative medicine use among cancer survivors: a population-based study’, Journal of Cancer Survivorship: Research and practice, vol. 5, no. 1, pp. 8-17.

Solaris Cancer Care 2017, About Us page, 2016, Solaris Cancer Care. Available from: https://solariscare.org.au/about-us/dr-david-joske/. [28 August 2017]

Mind and Body March 2017 – Ways for consumers to have a voice

In this episode, former staff member Stephanie Newell spoke to Mind and Body Host Cynthia Nixon about  the various ways people can be involved in improving the health system through Health Consumers’ Council (HCC). This included:

  • Reading Group, attending information sessions – e.g. Diversity Dialogues Forums and Focus Groups
  • What being a Consumer Representative means
  • Advocacy – Individual & Systemic
  • What are Consumer Advisory Councils and their country equivalent District Health Advisory Councils?
  • Forthcoming Patient Experience Week events featuring international patient experience community of practice, the Beryl Institute’s CEO Jason Wolf as Keynote speaker
  • Upcoming Orientation to HCC information session

Cultural Diversity

Why do we care about cultural diversity engagement?

At Health Consumers’ Council we believe in inclusion and the best health outcomes for all. WA continues to experience higher than national average population growth through migration and over half of West Australians have one or more parent born overseas. We speak 240 languages across a vast state. Language barriers as well as practices which are not culturally sensitive or inclusive can lead to poor uptake of services and poor health outcomes.

We recognise that the voice of people from Culturally and Linguistically Diverse (CaLD) backgrounds is often left unheard, for example, WA’s Patient Experience in Health Survey specifically excludes people requiring an interpreter. We also have significant concerns about the poor uptake of interpreters in health services and how this impacts on people being able to provide informed consent as patients. Research in the area is also very limited.

What do we do about it?

Health Consumers’ Council is committed to supporting services to assist with effective engagement and care provision to people from diverse cultures. We have developed a range of forums and workshops to assist both health service providers and community members. We are also establishing a panel of CaLD community members who might wish to share lived experience or community perspective in order to improve health services. Click on the links below to find out more.

Information about WA Health System

CaLD Community Workshops and Events

Health Service Provider Workshops and Events

CaLD Community Panel 

 

 

 

Alcohol and Other Drug Consumer & Community Coalition

Background

In 2015, the Health Consumers’ Council was funded to co-ordinate a project to build on the recommendations from the November 2014 Forum, Improving Consumer Involvement in the Alcohol and Other Drug Sector.   An Alcohol and Other Drug Advisory Group (AODAG) comprising government agencies, not for profit organisations and consumers was set up to oversee progress.

The project specifically addressed the following two recommendations:

  1. to develop a common set of principles for engagement
  2. outline best practice engagement strategies for the sector

In 2017 the WA Primary Health Alliance funded HCC to support the ongoing work of the Alcohol and Other Drug Advisory Group (AODAG) to oversee a new project entitled “Improving Consumer Involvement in the Alcohol and Other Drug Sector”.

It was agreed that the term ‘alcohol and other drug consumers’ was inclusive of current users, service users, potential service users, family members and supporters.

The Alcohol and Other Drug Consumer & Community Coalition (AODCCC) was incorporated in June 2018 in response to the need and support for an AOD specific consumer advocacy body. We have recently received funding from the Mental Health Commission in order to progress our establishment and have now released our Mission, Vision and Values.

AODCCC Membership

Membership is open to people who use or who have used alcohol and other drugs, their family members and significant others. A link to an online membership application can be found here and on the Facebook page.  Hard copy applications are available here and can be emailed to info@aodccc.org.

Management Committee

Full details of the current Management Committee are provided on the Australian Charities and Not-for-profit Commission (ACNC) website.

Contact AODCCC

For any information please contact:
Email info@aodccc.org
Phone (08) 6311 8402

Reporting

31st October Report – the first report as per 31st October Mental Health Commission funding deliverables can be found here.

Updates

August update (July activities)

September update (August activities)

October update (September activities)

November update (October activities)