International Day for the Elimination of Racial Discrimination

It’s also, Harmony Day

21 March 2025 is International Day for the Elimination of Racial Discrimination it’s also Harmony Day 2025 in Australia.

International Day for the Elimination of Racial Discrimination (IDERD) is recognised all around the world, except here in Australia where in the 1990s the Howard government chose to create an event called Harmony Day instead.

Harmony Day celebrates multiculturalism in Australia, which is a good thing.

But in doing so in place of addressing racial discrimination, it hides the history behind the International Day for the Elimination of Racial Discrimination and discourages us from discussing the hard work required to tackle racism in Australia.

Here at Health Consumers’ Council we are committed to calling out and tackling racism in the health system. In 2019 we successfully advocated for the inclusion of racial discrimination as a category that’s measured in the WA health complaints system – along with other forms of discrimination such as ableism and ageism.  

We’re working on a project this year to highlight racism in health care by examining the issues that arise in our individual advocacy cases to see what patterns are emerging. We also use our strong relationships with health system leaders to elevate the voices of people who experience racial discrimination to the highest levels of decision making in health.  

If you have experienced or witnessed racism in WA healthcare settings you can call it out

• Make a complaint to the health service concerned – draw attention to the fact that you believe the discrimination was based on race
• Hospitals: https://www.hconc.org.au/individual-advocacy/how-to-make-a-complaint/
• GPs: https://www.hconc.org.au/individual-advocacy/4-how-to-make-a-complaint-to-a-gp-or-clinic/
• Call It Out is a simple and secure way for people to report incidents of racism and discrimination towards First Nations Peoples in any setting: https://callitout.com.au/

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
For media enquiries: 0488 701 839

Long Covid Awareness Week 

 “Long COVID is like being taken hostage in your own body, it is not just a lingering cold, it is a profound disruption to normal life. People need hope and action. Until you experience this kind of  thing you cannot fathom the amount of resilience and mental fortitude you must have to survive.”  – a consumer who lives with Long COVID 

10-15 March 2025 is Long Covid Awareness week.

Since 2020, HCCWA has advocated for the needs and interests of health consumers in relation to COVID, both in relation to information, and to healthcare. While the acute period of COVID has passed, data suggests that between 5 and 20% of Australians experienced ongoing symptoms more than three months after a diagnosis of COVID. Some of these people had experienced fairly mild symptoms when they initially had COVID, but the ongoing symptoms can become debilitating and are often poorly understood among practitioners. One survey of people in WA who were experiencing Long COVID symptoms found that around 17% of people who were working full time before their COVID diagnosis had been unable to return to full time work 90 days after their initial infections, because of the complications of Long COVID and Long COVID recovery.

Consumers have shared their journeys with us. Some of them feel that their doctors don’t believe them, or don’t believe that Long COVID is the cause of their ongoing symptoms. They also report that doctors don’t seem to be well-informed on Long COVID symptoms, Long COVID treatment, and management.

There were Long COVID clinics and Long COVID support services in Western Australia in place for a short-time, however, many Long COVID Clinics have closed. The closures were poorly managed, with patients not being informed of the closure and appointments being cancelled without alternative avenues of care being offered. The East Metropolitan Health Service Post COVID-19 clinic remains open, but it is only available to patients who reside in the East Metro catchment area or those from the Kimberley, Pilbara and Wheatbelt.  

We’re interested to know – what questions or concerns do you have about COVID or Long COVID and Long COVID community resources in Western Australia? 

Share your feedback with us via this short survey and we will share the responses with the Department of Health. 

If this topic is of interest to you, Emerge Australia is undertaking lots of advocacy work on Long COVID.

Follow them here – Emerge Australia Inc  

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
Published on March 10, 2025  |  For media enquiries: 0488 701 839

References 

Tindle, Robert. Long covid Sufferers can take heart, Australian Journal of General Practice Vol 53, No 4, April 2024 

Woldegiorgis M, Cadby G, Ngeh S, Korda R, Armstrong P, Maticevic J, Kniwght P, Jardine A, Bloomfield L, Effler P. Long Covid in a highly vaccinated but largely unexposed Australian population following the 2022 SARS coV-2 Omicron wave: A cross sectional study. Medical Journal of Australia. March 2024 

Long covid Australia, a review of the literature. Australian Institute of Health and Welfare, 16 December 2022 https://www.aihw.gov.au/reports/covid-19/long-covid-in-australia-a-review-of-the-literature/summary) 

Costantino, V, Grafton Q, Kompas T, Chu L, Honeyman D, Notaras A, Macintyre CR; The public health and economic burden of long covid in Australia 2022-23: A modelling study, Medical Journal of Australia, August 2024 

** UPDATED 24/02/2025**

With a state election looming, we have been keeping an eye on the announcements from both major parties to see what they are saying about health. 

At Health Consumers’ Council we are keen to see new policies and programs within the health system to help improve the experience of consumers and patient outcomes. While big spending on infrastructure is always welcome and necessary, we are also really interested in ideas that will change and improve the way people interact with the health system every day. 

We want to see increased investment in primary care, increased investment in preventative health measures, a continued focus on improving the efficiency and capacity of  the hospital system and improved access to health care in the community. 

We’ve had a look at what the major parties have said about each of our priority areas and we’ve summarised them for you, so you can decide what is important for you in health when you are going to vote. 

Find out more:
WA Labour
WA Liberals
WA Greens
WA Nationals

They vote for you

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
Published on Feb 17, 2025  |  For media enquiries: 0488 701 839

Why the 2025 elections matter for healthcare policy, and how patients and consumers can influence change.

The Impact of the WA State Election 2025 and Federal Election on Healthcare

You might have noticed we’re in the run up to two elections. The WA State election on Saturday 8 March 2025, and the Federal election at some point in the next few months. Not only that, but the Productivity Commission and Cleanbill both published reports this month about healthcare in Australia pointing out what is very clear to anyone trying to access healthcare – there’s a lot of pressure on the hospital system and good luck trying to find a bulk billed GP appointment. And so the airwaves are alive with announcements and soundbites calling for action. And many of these will talk about the need for more hospital beds and hospital infrastructure.

Policy Priorities for Better Healthcare in WA and Australia

Here’s what we’d like to see from a patient and health consumer point of view:

• increased investment in primary care across the state
  • the Cleanbill report found there are fewer than 40 GP clinics in WA where someone who’s not on a concession card can be bulk-billed – with the cost of living pressures being experienced by many people we know this means people are thinking twice about accessing care
  • the increase in urgent cares is great, but it’s not the same as good primary care
• urgently increase the investment in preventative health measures
  • the Sustainable Health Review recommended an increase in preventative health spending to 5% of the health budget – we believe this should be in addition to the current budget – not require shifting expenditure from somewhere else
  • see this article about how “We don’t have a health problem, we have a village problem” for the sort of radical shift in thinking that is required
• a continued focus on improving the efficiency and capacity of the hospital system
  • while retaining a focus on delivering compassionate person-centred care
• improving access to healthcare in the community
  • one of the reasons for long waits in the Emergency Department is because there are people in hospital who are well enough to leave hospital, but not well enough to return home – we need more access to more community-based options, for example people looking for residential aged care
  • one study into a Compassionate Communities Community Connector model in WA’s South West found that the model led to a 63% reduction in hospital admissions – imagine if we were able to roll this kind of approach out across the state?

You can hear me talking about some of these points with Nadia Mitsopoulis on ABC Perth Mornings this month at this link. The whole item is from 4m45s and our comment is from 16m25s until 20m45s.

Long-term solutions: addressing the root causes of healthcare challenges

Change is not a quick fix

Despite what you’ll read in the coming weeks, there are no quick fixes to the current pressures. WA is not alone in facing these pressures on our healthcare system. And these pressures haven’t come out of nowhere.

The very powerful commercial interests of the food, alcohol and entertainment sectors have created a world over the last five decades where we are increasingly and strongly nudged towards unhealthy behaviours such as eating high levels of ultra-processed foods; spending increased time on electronic devices, including social media; and prioritising paid work over social and community connections.

Add to this the recovery from the turbulence of the COVID pandemic, and healthcare systems around the world are facing similar challenges.

The role of vested interests in shaping healthcare policies

Patient and consumer voices can cut through vested interests

There are many vested interests in the healthcare space. Powerful clinical groups and commercial interests are able to spend significant sums of money putting forward the interests of their members and stakeholders.

And in Australia, we have three levels of government who all have a role in health and healthcare. And unfortunately, getting different parts of government to work well together has never been easy.

Why consumer advocacy is essential for better healthcare policies

Only consumer advocates have the interests of patients, consumers and the community as their sole focus

It has never been more important that there are strong, informed, and connected patient, consumer and community voices in every discussion informing decisions about health and healthcare.

By Clare Mullen, Executive Director