Month: March 2025

Health Consumers Council Welcomes New WA Ministerial Health Team

For Immediate Release

Health Consumers’ Council WA welcomes Premier Cook’s announcement today of the team of ministers who will be leading the health and well-being portfolios in the new term of government.

Clare Mullen, Executive Director of Health Consumers’ Council, said “On behalf of health consumers, patients, families and people with lived experience we congratulate the Honourable Meredith Hammat MLA on her appointment as Minister for Health and Mental Health. We are encouraged that this portfolio is being led by someone who had the opportunity to hear directly from the community about their priorities for health in her role on the Sustainable Health Review Panel.”

In the run up to the election, HCC outlined our ambitions for the community in relation to health:

  • increased investment in primary care
  • increased investment in preventative health measures
  • a continued focus on improving the efficiency and capacity of the hospital system
  • improved access to health care in the community.

We are delighted that these priorities have been recognised with the allocation of ministerial portfolios and extend our congratulation to the other Ministers with specific health responsibilities:

  • Minister John Carey MLA, Minister for Health Infrastructure
  • Minister Sabine Winton MLA, Minister for Preventative Health
  • Minister Simone McGurk MLA, Minister for Aged Care and Seniors
  • Minister Stephen Dawson MLC, Minister for Medical Research
  • Minister Paul Papalia MLA, Minister for Emergency Services

We are further please to see that in addition to the new health portfolios that Ministers have also been assigned regional portfolios which we hope will enable a positive focus on more place-based care and community-led health initiatives.

We look forward to working with the whole ministerial team and Premier Cook in the coming weeks and months to discuss how they might deliver a fairer more inclusive health service that meets the needs of all Western Australians. HCC has a proud history of ensuring that health consumers, patients, carers, and people with lived experience are active partners in planning and delivering health and healthcare improvements for all West Australians deserve, and we will continue our advocacy to ensure that they are involved at every level of decision-making in health.

**Ends.**

For further comment, please contact Clare Mullen, Executive Director, 0488 701 839, clare.mullen@hconc.org.au

Harmony Day is a missed opportunity

International Day for the Elimination of Racial Discrimination

It’s also, Harmony Day

21 March 2025 is International Day for the Elimination of Racial Discrimination it’s also Harmony Day 2025 in Australia.

International Day for the Elimination of Racial Discrimination (IDERD) is recognised all around the world, except here in Australia where in the 1990s the Howard government chose to create an event called Harmony Day instead.

Harmony Day celebrates multiculturalism in Australia, which is a good thing.

But in doing so in place of addressing racial discrimination, it hides the history behind the International Day for the Elimination of Racial Discrimination and discourages us from discussing the hard work required to tackle racism in Australia.

Here at Health Consumers’ Council we are committed to calling out and tackling racism in the health system. In 2019 we successfully advocated for the inclusion of racial discrimination as a category that’s measured in the WA health complaints system – along with other forms of discrimination such as ableism and ageism.  

We’re working on a project this year to highlight racism in health care by examining the issues that arise in our individual advocacy cases to see what patterns are emerging. We also use our strong relationships with health system leaders to elevate the voices of people who experience racial discrimination to the highest levels of decision making in health.  

If you have experienced or witnessed racism in WA healthcare settings you can call it out

  • Make a complaint to the health service concerned – draw attention to the fact that you believe the discrimination was based on race
  • Hospitals: https://www.hconc.org.au/individual-advocacy/how-to-make-a-complaint/
  • GPs: https://www.hconc.org.au/individual-advocacy/4-how-to-make-a-complaint-to-a-gp-or-clinic/
  • Call It Out is a simple and secure way for people to report incidents of racism and discrimination towards First Nations Peoples in any setting: https://callitout.com.au/

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
For media enquiries: 0488 701 839

Celebrating multiculturalism, inclusiveness and equitable participation in WA

This month, Qistina Taufiq, HCC’s Cultural Diversity Engagement Officer, and Clare Mullen, Executive Director, were privileged to be invited to celebrate the WA Multicultural Awards – a program run by the WA Office of Multicultural Interests.

This is because Health Consumers’ Council was recognised as a nominee in the category of Community Service and Support – General Community Service organisation. The evening was a wonderful celebration of the diversity, capability, resourcefulness and strength of people from a wide range of culturally and linguistically diverse (CaLD) backgrounds and the organisations that serve them.

HCC has had a targeted program of work aiming both to ensure people coming to Australia from other countries understand the WA health system and how to navigate it – as well as ensuring the voices of people from multicultural backgrounds are sought and listened to as decisions about health and healthcare are made – since 2011. Louise Ford joined the HCC team then and pioneered a program of workshops on Health Rights and Responsibilities for CaLD communities.

The program was expanded in 2015 to include HCC’s popular workshop on Supporting Cultural Diversity in Healthcare. This workshop is aimed at health service providers who want to develop their capability in ensuring health services are inclusive of people from all cultures. HCC is funded to run this workshop twice a year – and we also deliver it on a fee for service basis to a number of healthcare organisations.

In 2025, HCC will be finishing a project we’ve been working on with Cancer Council WA and the WA Department of Health to produce a range of information leaflets about cancer treatment for people from CaLD backgrounds. HCC’s role has been to support a consumer advisory group made up of people from a range of communities and cultures to inform the development and production of these resources.

Congratulations to all the nominees and winners of these important Awards.

A picture of a page from the Multicultural Awards showing Health Consumers' Council as a nominee

Employment opportunity: Individual Advocate | part-time | on-site

Advocate, part-time, fixed term for 12 months with the possibility of extension

We are seeking a skilled and passionate SCHADS Level 5 health advocate to join our individual advocacy team on a part-time (three days a week), fixed-term contract for 12 months.

It can be difficult for consumers and patients to navigate the Western Australian health system, or to give feedback if they are unhappy with any aspect of their healthcare experience. This role supports health consumers in having their voice heard within the WA health system, while assisting individuals to navigate the health system and assert their rights and provides assistance through the complaints process when needed.

The role offers:

  • The ability to make an impact in individuals’ health journeys, and their experiences of the WA health system
  • The opportunity to be a part of a workplace that is driven by championing consumer health rights
  • A welcoming, inclusive and supportive workplace, where everyone is encouraged to bring all of themselves
  • Externally facilitated team supervision
  • A competitive not-for-profit annual base salary with salary packaging
  • Flexible working arrangements including the opportunity to work from home
  • Additional leave entitlements

About you:

  • You’re looking for a role where you can apply your skills in advocacy and health rights to work that you care about
  • You’re interested in the health system and care about people’s experiences of it
  • You’re comfortable responding to people “where they are”, including when people are expressing distress about their experiences.

Individual Advocate position overview

This role sits within the individual advocacy team, and although the role functions quite independently, it is well supported by the Senior Advocates and the Advocacy Manager, as well as all other team members. In this role, most of the contact with consumers will be either on the telephone or through e-mail, however, attendance at appointments in the community with consumers is another important facet of this role.

A typical week might see you doing a range of tasks including:

  • Contacting consumers from the advocacy waitlist or being the first point of contact with consumers seeking support
  • Building advocacy plans with consumers within HCC’s scope and referring consumers to external agencies for issues that fall outside of HCC’s support
  • Attending consumer appointments in hospitals, GP practices or at community mental health sites
  • Liaising with hospital staff to advocate for consumers in relation to current health needs or retrospective complaints
  • Writing letters of complaints addressed to health service providers, in conjunction with consumers
  • Writing case notes within our Customer Relation Management system
  • Attending team meetings and supervision

See the job description for a full outline of responsibilities for the role.

To apply for the position, please submit a cover letter of no more than two pages addressing the selection criteria, along with a current resume of no more than two pages outlining your work experience, skills and any relevant education or training.

Applications that do not address the criteria may not be considered.

HCC strongly encourage applications from Aboriginal and Torres Strait Islander peoples, people with disability, people from diverse cultural and linguistic backgrounds and LGBTI+ people.

Selection criteria

Essential

  1. Understanding of the value of individual advocacy for consumers experiencing issues within the health system and the levers available to achieve advocacy outcomes
  2. Highly developed communication and interpersonal skills to be able to confidently advocate, negotiate, influence, mediate, de-escalate, and develop effective workplace relationships with consumers and other stakeholders
  3. An understanding of the social determinants of health, systemic barriers and complex trauma when working with people experiencing vulnerability and disadvantage, and the ability to operate with a trauma informed lens
  4. Ability to work autonomously with strong organisational skills to manage competing priorities simultaneously, in order to meet deadlines
  5. Highly developed analysis and report writing and computer skills
  6. Good working knowledge of the WA health system, community service organisations and referral pathways

Desirable

  1. Previous experiencing providing individual advocacy
  2. Tertiary qualification in social or behavioural science (e.g., social work, psychology, sociology), or previous advocacy experience or lived experience in navigating the health system
  3. Understanding of the Mental Health Act 2014

Applications close Monday 31 March 5:00 pm

If you require any adjustments to submit your application or wish to have a confidential discussion about the role, please contact Tania Harris, Engagement & Advocacy Manager on (08) 9221 3422 (Ext 1) or email tania.harris@hconc.org.au

A long awaited win in sight for transparency on health costs

By Clare Mullen, Executive Director

Today – 17 March 2025 – the Federal Minister for Health and Aged Care, Mark Butler – is speaking to a range of media outlets about his announcement that, if re-elected, a Federal Labor Government will be publishing the costs of specialist medical fees on the Government’s Medical Costs Finder website.

But wait – isn’t that the website that was set up in 2019 to do exactly that? Well, yes. But it wasn’t mandatory for doctors to add their information. And so only 70 of them did. Out of approximately 11,000 specialists in Australia.

As I highlighted in this blog article last May, it’s important that consumers – in this case patients – have access to cost information in order to make their decision about where to get specialist treatment.

Health Consumers’ Council WA represents the interest of consumers, and WA consumers particularly, on the Federal Government’s Out of Pocket Costs Transparency Reference Group. Through that group, we advocated that any health service provider that receives public funding should be required to publish their pricing information on the Medical Costs Finder website.

We hope that whoever is in Government after the next election will follow through on this commitment to patient and consumer power and ensure people can make informed decisions about specialist healthcare.

Opinion: It’s time for full transparency on who’s making money out of our healthcare

Long Covid Awareness Week 10 to 15 March 2025

Long Covid Awareness Week 

 “Long COVID is like being taken hostage in your own body, it is not just a lingering cold, it is a profound disruption to normal life. People need hope and action. Until you experience this kind of  thing you cannot fathom the amount of resilience and mental fortitude you must have to survive.”  – a consumer who lives with Long COVID 

10-15 March 2025 is Long Covid Awareness week.

Since 2020, HCCWA has advocated for the needs and interests of health consumers in relation to COVID, both in relation to information, and to healthcare. While the acute period of COVID has passed, data suggests that between 5 and 20% of Australians experienced ongoing symptoms more than three months after a diagnosis of COVID. Some of these people had experienced fairly mild symptoms when they initially had COVID, but the ongoing symptoms can become debilitating and are often poorly understood among practitioners. One survey of people in WA who were experiencing Long COVID symptoms found that around 17% of people who were working full time before their COVID diagnosis had been unable to return to full time work 90 days after their initial infections, because of the complications of Long COVID and Long COVID recovery.

Consumers have shared their journeys with us. Some of them feel that their doctors don’t believe them, or don’t believe that Long COVID is the cause of their ongoing symptoms. They also report that doctors don’t seem to be well-informed on Long COVID symptoms, Long COVID treatment, and management.

There were Long COVID clinics and Long COVID support services in Western Australia in place for a short-time, however, many Long COVID Clinics have closed. The closures were poorly managed, with patients not being informed of the closure and appointments being cancelled without alternative avenues of care being offered. The East Metropolitan Health Service Post COVID-19 clinic remains open, but it is only available to patients who reside in the East Metro catchment area or those from the Kimberley, Pilbara and Wheatbelt.  

We’re interested to know – what questions or concerns do you have about COVID or Long COVID and Long COVID community resources in Western Australia? 

Share your feedback with us via this short survey and we will share the responses with the Department of Health. 

If this topic is of interest to you, Emerge Australia is undertaking lots of advocacy work on Long COVID.

Follow them here – Emerge Australia Inc  

Bronwyn Ife  |  Systemic Advocacy and Engagement Lead
Published on March 10, 2025  |  For media enquiries: 0488 701 839


References 

Tindle, Robert. Long covid Sufferers can take heart, Australian Journal of General Practice Vol 53, No 4, April 2024 

Woldegiorgis M, Cadby G, Ngeh S, Korda R, Armstrong P, Maticevic J, Kniwght P, Jardine A, Bloomfield L, Effler P. Long Covid in a highly vaccinated but largely unexposed Australian population following the 2022 SARS coV-2 Omicron wave: A cross sectional study. Medical Journal of Australia. March 2024 

Long covid Australia, a review of the literature. Australian Institute of Health and Welfare, 16 December 2022 https://www.aihw.gov.au/reports/covid-19/long-covid-in-australia-a-review-of-the-literature/summary) 

Costantino, V, Grafton Q, Kompas T, Chu L, Honeyman D, Notaras A, Macintyre CR; The public health and economic burden of long covid in Australia 2022-23: A modelling study, Medical Journal of Australia, August 2024 

 

 

 

 

 

 

Meet your HCCWA Team: Chrissy

Our team works hard for the people of WA, we’re passionate about making a difference in the lives of West Aussies and working hard to make patients, carers, loved ones—all health consumers—are at the centre of our healthcare system:  Our health. Our voice. Our healthcare. 

We like you to meet Chrissie, an integral part of our individual advocacy team.

How long have you worked at HCCWA

14 years on the 14th March (2025)

What inspired you to work at HCCWA?

I saw how an advocate from HCCWA advocated for someone that made a huge improvement in their life (teeth vs toothless).  I thought I would like to be able to help people improve their health and life like that. The consumer’s life improved dramatically.

Describe what you do.

I advocate for people in WA who have a query, concern or communication issue with a WA health service.  Sometimes it is just providing information about what a person’s rights are, what services are available,through to supporting people in appointments and meetings related to their health.  I/we aim to empower health service users to be able to advocate for themselves and their family and friends, so they may have an optimal health journey.

What do you think about HCCWA and the work we do?

HCCWA is the best place I have ever worked due to the staff who I work with (and that spans a lot of years!).

The HCC team are all amazing, caring, committed  people who go the extra mile to ensure that the clients or consumers that use our service, are at the forefront of everything we do.  We strive to do our best to help ensure health service users rights are upheld and empower them to have an improved health journey. Keeping our staff supported is key to being the best we can for our consumers.

How do you see your work helping to improve outcomes and experiences for everyone in WA?

Each day I see the work of our team supporting WA health consumers to find out more about their rights and the services available in WA. Whether it be through engagement or advocacy, consumers will know more about what  and who is available and how they might access services. Everyday I listen to consumers, assisting them to realise what is possible vs likely, providing them with tools to help them navigate the health system, or other support (referrals to other services where appropriate), enabling them to have more effective, safer and less confusing healthcare.

Ever met anyone famous?

Not for a long time but I spoke to Cat Stevens for about a minute, when he was leaving the WACA in 1970’s (I was only about 14 years old so I was in heaven for about a week after that!) and more recently, about 20 years ago, Bob Geldof came in and browsed at the antique stall I was working at in Scarborough Fair Markets.

Consumers in the media

As WA’s peak body for health consumers, we are often approached for comment by news outlets. Here’s a snapshot of some recent coverage:

Health consumer priorities in the WA state election

This is a follow on from our blog post outlining our priorities and listing the election commitments from the two major parties against those priorities.

Based on our discussions with consumers HCC’s priorities for health are:

  • Increased access to affordable primary care
  • Increased investment in things that help us stay healthy (preventative measures)
  • Continued improvement in the safety, efficiency and capacity of the hospital system
  • Improved access to health care in the community and closer to home.

Many of our allies in the health consumer and lived experience sector have published their specific requests for election time.  Their answers tell an interesting story of a sector where incredible work could be done if there was adequate funding, but also where there are some excellent, innovative ideas that would not be particularly costly to implement.

Let’s have a look at what’s being asked for:

Carers WA Carers Count at the 2025 State Election | Carers WA

  • $400,000 Carer hardship and carer respite grants program for WA Carers
  • Establish a Carers card
  • A new carers strategy
  • $890 000 support for young carers in regional areas
  • Establish a service navigation system for carers

Aboriginal Health Council of WA WA State Election: AHCWA’s Key Priorities – AHCWA

  • Culturally safe short stay accommodation for pregnant women
  • Affordable and appropriate housing
  • Funding for Aboriginal Environmental Health Model of care and community capacity building for remote maintenance
  • Free dental care for all Aboriginal people in WA
  • Social and emotional wellbeing and family and domestic and sexual violence program funding
  • Improved child development services
  • PATS Coordinator in each region

Developmental Disability WA Election Undertakings 2025 for people with intellectual disability

  • Introduce mandatory training on intellectual disabilities for all health staff.
  • Set up Specialist Disability Health Hubs in each health region to improve the health and mental health of PwID.
  • Ensure the State health plan includes PwID as a priority group.
  • Introduce a “flag” to identify intellectual disability in a person’s WA health record
  • Contribute to a WA Easy Read website that provides key public information about health and other government services.

Consumers of Mental Health WA Election 2025: An Election for Mental Health – Consumers of Mental Health WA

  • An alternative to Emergency departments for people in emotional crisis
  • Increase finding to co designed community and peer led mental health services
  • Independent review, co-led by people with lived experience, on strategies to eliminate force, seclusion and restraint
  • Enhance access to advocacy through mental health advocacy service
  • Commit to a human rights act for WA
  • Secure and sustainable funding to pilot Aboriginal community controlled services
  • Embark on funded commitment to the Gayaa Dhuwi declaration implementation plan

Council on the Ageing WA 2025 Election Platform  – Council On The Ageing WA

  • Waive stamp duty for people aged over 65
  • Incorporate Silver Housing Standards in the WA Building Code
  • Expand the supply of affordable housing
  • Introduce a $150 “Fit for Life” voucher for seniors, modelled on the Kidsport initiative
  • Fund a “Preparing for the Unexpected” program to support seniors who are likely to be hospitalised due to a complex health issue or frailty
  • Fund a falls prevention program
  • Provide ongoing $250 000 per annum to Council on the Ageing WA

These priorities have been informed by health consumers, people with lived experience, and input from members of the above organisations. Amplifying and championing the voices of consumers and people with lived experience leads to better outcomes, whether that be in policy development or program delivery.

Including consumer voices goes beyond consultation, it means properly involving people who use the health system to help all of us to understand and address the unfairness in the system.  

What we see when we look at this list is a commitment to important preventative health projects, and projects that would make our health system fairer for all.

These ideas would all contribute to healthier, more connected community members, who are receiving the assistance they need in their communities. This in turn improves the patient experience in our health system and reduces the pressure on the public hospital system meaning that those who need healthcare can get it promptly.

If you’ve any thoughts about any of these, please contact Bronwyn Ife at bronwyn.ife@hconc.org.au